Department of Community Health and Epidemiology, Queen's University, Kingston, Ontario, Canada.
J Intellect Disabil Res. 2010 Mar;54(3):187-93. doi: 10.1111/j.1365-2788.2010.01256.x. Epub 2010 Feb 8.
Researchers have noted difficulties in attracting adequate numbers of participants with intellectual disabilities (ID) to their studies.
This study was a review of participation by adults with ID in research conducted in South Eastern Ontario over a 20-year period (1987-2006). Original research studies were identified by local investigators and then reviewed for inclusion and exclusion criteria. The report of each study was then reviewed by three reviewers and key information was extracted. The extent of study participation was calculated using three methods and compared along with key design characteristics.
Nine studies met all inclusion/exclusion criteria and provided sufficient data to calculate participation. Among the studies there was a variety of purposes, research designs and recruitment strategies. Using the participant/approached calculation, participation varied between 41.8% and 100%. Higher participation was observed in studies where investigators had direct access to participants, the data collection was non-invasive and consent was required from substitute decision-makers only. There was no clear trend of increasing or decreasing participation over time.
Researchers seeking the participation of adults with ID in their studies must incorporate factors influencing participation into study designs to ensure robust results and effective use of research resources.
研究人员指出，难以吸引足够数量的智障人士（ID）参与他们的研究。
本研究回顾了在安大略省东南部进行的为期 20 年（1987-2006 年）的研究中，成年人参与 ID 的情况。当地研究人员确定了原始研究，并对纳入和排除标准进行了审查。然后，三位审稿人对每份研究报告进行了审查，并提取了关键信息。使用三种方法计算了研究参与度，并比较了关键设计特征。
符合所有纳入/排除标准的 9 项研究提供了足够的数据来计算参与度。在这些研究中，研究目的、研究设计和招募策略多种多样。使用参与者/接近者的计算方法，参与率在 41.8%至 100%之间变化。研究人员可以直接接触到参与者、数据收集无侵入性以及仅需要替代决策者同意的研究中，观察到的参与度更高。没有明显的随时间增加或减少的趋势。
研究人员在研究中寻求成年人 ID 的参与，必须将影响参与的因素纳入研究设计中，以确保研究结果的稳健性和有效利用研究资源。
