Robinson A
Research Design Service North East, National Institute for Health Research, jointly hosted by the Institute of Health and Society, Newcastle University, and the School of Medicine, Pharmacy and Health, Durham University, UK.
J Laryngol Otol. 2014 Apr;128(4):318-325. doi: 10.1017/S0022215114000735.
You've probably heard of patient and public involvement by now. You may even have 'involved' people in your research. But why involve patients, carers and members of the public at all? Is it just another hoop to jump through when preparing a research funding application for submission, or could it actually add something to your research? Could involving patients and members of the public even help you to design and deliver better research, with outcomes focused directly on the needs of your patient group?
This article aims to answer some of these questions. It considers the theory underpinning patient and public involvement. This is followed by practical suggestions and advice to help you develop (or further develop if you already involve people!) patient and public involvement within your own research. There is also a case study to illustrate some of the main points, and extracts written by members of Research Design Service North East Consumer Panels.
到目前为止,你可能已经听说过患者和公众参与。你甚至可能已经让人们参与到你的研究中。但为什么要让患者、护理人员和公众参与进来呢?这仅仅是在准备提交研究资金申请时需要跨越的又一个障碍,还是真的能为你的研究增添些什么?让患者和公众参与是否甚至能帮助你设计和开展更好的研究,使研究结果直接聚焦于你的患者群体的需求?
本文旨在回答其中一些问题。它考虑了患者和公众参与背后的理论。随后给出实用的建议和指导,以帮助你在自己的研究中开展(如果你已经让人们参与进来,则是进一步开展)患者和公众参与。还有一个案例研究来说明一些要点,以及东北研究设计服务消费者小组的成员撰写的摘录。