Jilani Hannah, Schilling Imke, Gerhardus Ansgar, Klink Urte
Department for Health Services Research, Institute for Public Health and Nursing Research- IPP, University of Bremen, Grazer Str. 4, Bremen, D-28359, Germany.
BMC Public Health. 2025 Aug 14;25(1):2767. doi: 10.1186/s12889-025-24019-x.
The active involvement of target groups is gaining increasing recognition in health research. Children, in particular, have unique needs and perspectives that differ significantly from those of adult researchers, making their participation essential for improving the relevance and quality of research. Moreover, actively involving children fosters their empowerment. To advance this field, the generation of new knowledge and the refinement of methodologies are crucial. While previous studies have often engaged children with specific health conditions there remains a lack of research evaluating the involvement of healthy children, particularly in terms of process. Therefore, this study aims at answering the two following research questions: (1) What are the barriers and facilitators from the researchers' perspective when involving healthy children in research? and (2) How do children perceive their active involvement in developing a healthy nutrition intervention in Germany?
From September 2023 to January 2024, an intervention to promote healthy nutrition was collaboratively developed with 15 healthy children aged 11 to 12 years and two researchers as part of a school activity group. The process began with joint discussions to clarify goals and roles. Intervention components were developed collaboratively with the children. Researchers documented the process through personal minutes and post scripts, which were analysed to identify barriers and facilitators across three phases: 'Initiating the process', 'Building relationships and defining aims', and 'Collaboration process'. Additionally, a child-friendly, semi-structured focus group discussion was conducted to evaluate the process, with the data analysed narratively.
The researchers' protocols and postscripts identified both barriers and facilitators across all phases. Overall, the process demanded considerable openness and flexibility from both children and researchers. Establishing shared goals and clarifying roles was time-consuming, and balancing differing expectations without causing disappointment to any of the group proved challenging. Nevertheless, the focus group showed that children enjoyed the project, appreciated the relaxed after-school setting, and valued the interactive approach. They reported learning a lot but expressed disappointment over the limited hands-on activities, such as food preparation, which they had anticipated.
The evaluation of children's active involvement highlighted the importance of clear expectation management for successful collaboration. This requires time, openness, and flexibility from all participants. The findings provide practical insights for researchers, supporting the effective involvement of children while reducing potential barriers in future projects.
目标群体的积极参与在健康研究中越来越受到认可。特别是儿童,他们有独特的需求和观点,与成年研究人员有很大不同,因此他们的参与对于提高研究的相关性和质量至关重要。此外,让儿童积极参与能增强他们的权能。为推动该领域发展,新知识的产生和方法的完善至关重要。虽然以往研究常常让患有特定健康状况的儿童参与,但仍缺乏评估健康儿童参与情况的研究,尤其是在过程方面。因此,本研究旨在回答以下两个研究问题:(1)从研究人员的角度来看,让健康儿童参与研究的障碍和促进因素有哪些?(2)在德国,儿童如何看待他们积极参与制定健康营养干预措施?
2023年9月至2024年1月,作为学校活动小组的一部分,与15名11至12岁的健康儿童和两名研究人员合作开展了一项促进健康营养的干预措施。该过程始于联合讨论以明确目标和角色。干预措施的组成部分与儿童共同制定。研究人员通过个人记录和后记记录该过程,并进行分析以确定三个阶段的障碍和促进因素:“启动过程”、“建立关系和确定目标”以及“合作过程”。此外,还进行了一次适合儿童的半结构化焦点小组讨论以评估该过程,并对数据进行叙述性分析。
研究人员的记录和后记确定了所有阶段的障碍和促进因素。总体而言,该过程要求儿童和研究人员都具备相当的开放性和灵活性。确立共同目标和明确角色很耗时,在不使任何一方失望的情况下平衡不同期望颇具挑战性。然而,焦点小组表明儿童喜欢这个项目,赞赏轻松的课后环境,并重视互动方式。他们表示学到了很多,但对预期的实践活动(如食物准备)有限感到失望。
对儿童积极参与的评估凸显了明确期望管理对成功合作的重要性。这需要所有参与者投入时间、保持开放并具备灵活性。研究结果为研究人员提供了实用的见解,支持儿童的有效参与,同时减少未来项目中的潜在障碍。