Daga Eleonora, Corvo Elisabetta, Marucci Anna Rita, Sansoni Julita
Dottore in Infermieristica, Sapienza Università di Roma.
Ph.D.C. in Health and Social Care, Canterbury Christ Church University (UK), Staff Unità di ricerca infermieristica, Sapienza Università di Roma.
Prof Inferm. 2014 Jan-Mar;67(1):5-14. doi: 10.7429/pi.2014.671005.
The aim of this study is to investigate the experience of primary caregivers (men and women) of Alzheimer Disease dementia, in order to tailor program and project to avoid care giving burden. A qualitative phenomenological method was used and the sample was defined by data saturation. Interviews were carried out and recorded in a day care Centre, transcribed verbatim. The analysis was conducted coding common themes and phrases. Six main themes emerged. Our results are similar to those existing in literature, showing care givers as individual in great danger physically and mentally. In the light of the study it is possible to tailor a nursing model in order to improve quality of life and decrease the burden of caregivers, this model should be implemented and analyzed.
本研究旨在调查阿尔茨海默病痴呆症主要照顾者(男性和女性)的经历,以便调整计划和项目以避免照顾负担。采用了定性现象学方法,样本由数据饱和定义。访谈在日间护理中心进行并记录,逐字转录。分析通过对常见主题和短语进行编码来进行。出现了六个主要主题。我们的结果与文献中的现有结果相似,表明照顾者在身心方面处于极大危险之中。根据该研究,可以调整一种护理模式以提高生活质量并减轻照顾者的负担,这种模式应予以实施和分析。