Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.
Division of Nephrology, School of Medicine, Stanford University, Palo Alto, CA.
Am J Kidney Dis. 2014 Sep;64(3):338-46. doi: 10.1053/j.ajkd.2014.02.026. Epub 2014 Apr 24.
There recently has been a paradigm shift in health care policies and research toward greater patient centeredness. A core tenet of patient-centered care is that patients' needs, values, and preferences are respected in clinical decision making. Qualitative research methods are designed to generate insights about patients' priorities, values, and beliefs. However, in the past 5 years (2008-2013), only 23 (0.4%) of the 6,043 original articles published in the top 5 nephrology journals (assessed by impact factor) were qualitative studies. Given this observation, it seems important to promote awareness and better understanding within the nephrology community about qualitative research and how the findings can contribute to improving the quality and outcomes of care for patients with chronic kidney disease. This article outlines examples of how qualitative research can generate insight into the values and preferences of patients with chronic kidney disease, provides an overview of qualitative health research methods, and discusses practical applications for research, practice, and policy.
最近,医疗保健政策和研究已经发生了范式转变,更加以患者为中心。以患者为中心的护理的核心原则是,在临床决策中尊重患者的需求、价值观和偏好。定性研究方法旨在深入了解患者的优先级、价值观和信念。然而,在过去的 5 年(2008-2013 年),在排名前 5 的肾病学杂志(按影响因子评估)发表的 6043 篇原始文章中,只有 23 篇(0.4%)是定性研究。鉴于这一观察结果,似乎有必要在肾病学界提高对定性研究的认识和理解,以及了解研究结果如何有助于提高慢性肾脏病患者的护理质量和结果。本文概述了定性研究如何深入了解慢性肾脏病患者的价值观和偏好,概述了定性健康研究方法,并讨论了研究、实践和政策的实际应用。