Jones Lydia, Goddard Lorna, Hill Elisabeth L, Henry Lucy A, Crane Laura
Goldsmiths, University of London, London, UK.
J Autism Dev Disord. 2014 Dec;44(12):3033-44. doi: 10.1007/s10803-014-2161-3.
A total of 128 adults with high-functioning autism spectrum disorders were surveyed concerning the process they went through to obtain their diagnosis and the subsequent support they received. Results suggested that routes to diagnosis were quite heterogeneous and overall levels of satisfaction with the diagnostic process were mixed; 40 % of respondents were 'very/quite' dissatisfied, whilst 47 % were 'very/quite' satisfied. The extent of delays, number of professionals seen, quality of information given at diagnosis and levels of post-diagnostic support predicted overall satisfaction with the diagnostic process. Important areas and suggestions for improvement were noted for all stages of the diagnostic pathway. Respondents also displayed above average levels of depressed mood and anxiety, with greater support being requested in this area.
共对128名患有高功能自闭症谱系障碍的成年人进行了调查，内容涉及他们获得诊断的过程以及随后得到的支持。结果表明，诊断途径相当多样化，对诊断过程的总体满意度参差不齐；40%的受访者“非常/相当”不满意，而47%的受访者“非常/相当”满意。诊断延迟的程度、看过的专业人员数量、诊断时提供的信息质量以及诊断后支持的水平预测了对诊断过程的总体满意度。针对诊断途径的各个阶段都指出了重要领域和改进建议。受访者还表现出高于平均水平的抑郁情绪和焦虑，他们在这方面需要更多的支持。
