Gordon Elisa J, Mullee Jack O, Ramirez Daney I, MacLean Jessica, Olivero Maria, Feinglass Joseph, Carney Paula, O'Connor Kate, Caicedo Juan Carlos
Northwestern University, Chicago, Illinois.
National Kidney Foundation of Illinois, Chicago, Illinois.
Prog Transplant. 2014 Jun;24(2):152-62. doi: 10.7182/pit2014946.
Given the shortage of kidneys for transplant, living kidney donation (LKD) is increasingly used to expand the organ donor pool. Although Hispanics/Latinos need disproportionately more kidney transplants, they receive a smaller proportion of living donor kidney transplants than other ethnic/racial groups.
To assess Hispanics' awareness, perceptions, misconceptions, cultural beliefs, and values about and barriers to LKD.
Nine focus groups were conducted with 76 adult Hispanics in Chicago, Illinois, between January and March 2012.
Focus groups included kidney transplant recipients, living kidney donors, dialysis patients, and the general Hispanic public.
Several themes emerged as perceived barriers to LKD. Many participants identified knowledge deficits about LKD, expressing uncertainty about the differences between LKD and deceased donation, and whether kidney disease simultaneously afflicts both kidneys. Many believed that donors experience dramatically shorter life expectancies, are unable to have children, and are more susceptible to kidney disease after donating. Recipients and donors reported that family members were involved in discussions about the donor's decision to donate, with some family members discouraging donation. Financial barriers cited included fear of becoming unable to work, losing one's job, or being unable to pay household bills while recovering. Participants also identified logistic barriers for undocumented immigrants (eg, the inability to obtain government insurance for transplant candidates and uncertainty about their eligibility to donate). Donors desired information about optimizing self-care to promote their remaining kidney's health. Culturally competent interventions are needed to redress Hispanics' knowledge deficits and misconceptions and reduce LKD disparities among Hispanics.
鉴于用于移植的肾脏短缺，活体肾捐赠（LKD）越来越多地被用于扩大器官捐赠者群体。尽管西班牙裔/拉丁裔人群对肾移植的需求不成比例地更高，但他们在活体供肾移植中所占的比例却低于其他族裔/种族群体。
评估西班牙裔人群对活体肾捐赠的认知、看法、误解、文化信仰、价值观以及活体肾捐赠的障碍。
2012年1月至3月期间，在伊利诺伊州芝加哥市对76名成年西班牙裔人群进行了9次焦点小组访谈。
焦点小组包括肾移植受者、活体肾捐赠者、透析患者以及西班牙裔普通公众。
出现了几个被视为活体肾捐赠障碍的主题。许多参与者指出对活体肾捐赠的知识存在欠缺，对活体肾捐赠与 deceased donation（此处疑有误，可能是deceased donor donation即尸体捐赠）之间的差异以及肾病是否会同时影响双肾表示不确定。许多人认为捐赠者的预期寿命会大幅缩短，无法生育，并且捐赠后更容易患肾病。受者和捐赠者报告称，家庭成员参与了关于捐赠者捐赠决定的讨论，一些家庭成员不鼓励捐赠。提到的经济障碍包括担心在恢复期间无法工作、失去工作或无法支付家庭账单。参与者还指出了无证移民面临的后勤障碍（例如，移植候选人无法获得政府保险以及他们捐赠资格的不确定性）。捐赠者希望获得有关优化自我护理以促进剩余肾脏健康的信息。需要有文化能力的干预措施来纠正西班牙裔人群的知识欠缺和误解，并减少西班牙裔人群中活体肾捐赠的差异。
