Gordon Elisa J, Feinglass Joe, Carney Paula, Vera Karina, Olivero Maria, Black Anne, O'Connor Kate Grubbs, Baumgart Jessica MacLean, Caicedo Juan Carlos
Center for Healthcare Studies, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA Comprehensive Transplant Center, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA
Division of General Internal Medicine and Geriatrics, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
Prog Transplant. 2016 Mar;26(1):82-91. doi: 10.1177/1526924816632124.
Hispanic dialysis patients often encounter barriers to learning about living kidney donation and transplantation. Effective culturally targeted interventions to increase knowledge are lacking. We developed a culturally targeted educational website to enhance informed treatment decision making for end-stage kidney disease.
A pretest/posttest intervention study was conducted among adult Hispanic patients undergoing dialysis at 5 dialysis centers in Chicago, Illinois. Surveys included a 31-item, multiple-choice pretest/posttest of knowledge about kidney transplantation and living donation, attitudes about the website, Internet use, and demographics. The intervention entailed viewing 3 of 6 website sections for a total of 30 minutes. The pretest/posttest was administered immediately before and after the intervention. Participants completed a second posttest via telephone 3 weeks thereafter to assess knowledge retention, attitudes, and use of the website.
Sixty-three patients participated (96% participation rate). Website exposure was associated with a mean 17.1% same day knowledge score increase between pretest and posttest (P < .001). At 3 weeks, participants' knowledge scores remained 11.7% above pretest (P < .001). The greatest knowledge gain from pretest to 3-week follow-up occurred in the Treatment Options (P < .0001) and Cultural Beliefs and Myths (P < .0001) website sections. Most participants (95%) "agreed" or "strongly agreed" that they would recommend the website to other Hispanics.
Web-based education for patients undergoing dialysis can effectively increase Hispanics' knowledge about transplantation and living kidney donation. Study limitations include small sample size and single geographic region study. Dialysis facilities could enable website access as a method of satisfying policy requirements to provide education about kidney transplantation.
西班牙裔透析患者在了解活体肾捐赠和移植方面常常遇到障碍。目前缺乏针对不同文化背景的有效干预措施来增加这方面的知识。我们开发了一个针对特定文化背景的教育网站，以促进终末期肾病患者做出明智的治疗决策。
在伊利诺伊州芝加哥市的5个透析中心，对成年西班牙裔透析患者进行了一项干预前后测试的研究。调查包括一项31项的关于肾移植和活体捐赠知识的多项选择题前测/后测、对网站的态度、互联网使用情况以及人口统计学信息。干预措施包括观看6个网站板块中的3个，总计30分钟。在干预前后立即进行前测/后测。此后3周，参与者通过电话完成第二次后测，以评估知识保留情况、态度以及网站使用情况。
63名患者参与（参与率96%）。网站浏览与前测和后测之间当天知识得分平均提高17.1%相关（P <.001）。在3周时，参与者的知识得分仍比前测高11.7%（P <.001）。从前测到3周随访，知识增长最多的是“治疗选择”（P <.0001）和“文化信仰与误解”（P <.0001）网站板块。大多数参与者（95%）“同意”或“强烈同意”他们会向其他西班牙裔推荐该网站。
针对透析患者的网络教育可以有效增加西班牙裔对移植和活体肾捐赠的知识。研究局限性包括样本量小和单地区研究。透析机构可以提供网站访问，作为满足提供肾移植教育政策要求的一种方式。
