Sarrami-Foroushani Pooria, Travaglia Joanne, Debono Deborah, Braithwaite Jeffrey
Centre for Clinical Governance Research, Australian Institute of Health Innovation (AIHI), University of New South Wales (UNSW), Sydney, NSW 2052, Australia.
BMC Health Serv Res. 2014 Jun 13;14:250. doi: 10.1186/1472-6963-14-250.
Although consumer and community engagement (CCE) in health care is receiving increasing attention, research and practice in this area are hampered by the variability of concepts and terminology commonly employed. This scoping meta-review aims to identify key CCE concepts and examine terminology used to describe them.
In a scoping meta-review, an extensive list of 47 phrases and 11 Medical Subject Headings (MeSH) was used to undertake a comprehensive and systematic search in PubMed Central, Embase, EBM reviews, CINAHL, APAPsycNET, and Scopus.
59 systematic reviews met the selection criteria and were included in the final analysis. The analysis identified nine different concepts related to CCE: shared decision making, self-management, CCE in health care systems, community-based health promotion, providing access to health care, rehabilitation, participation in research, collaboration in research design and conduct, and peer support. The identified concepts differ from each other in many aspects including the aim of the activity, the role of consumers and the type of professionals' involvement. Each concept was described by a range of terms, with some terms shared by different concepts. In addition, two overlapping concepts of patient-centeredness and patient empowerment were recognised.
This study describes CCE-related key concepts and provides new insight into their relationship with different CCE-related terms. Identification of key CCE-related concepts and terms will be useful to focus future studies and initiatives and enhance production of CCE-related evidence.
尽管消费者和社区参与医疗保健日益受到关注，但该领域的研究和实践受到常用概念和术语多变性的阻碍。本范围综述旨在确定关键的消费者和社区参与概念，并研究用于描述这些概念的术语。
在范围综述中，使用包含47个短语和11个医学主题词（MeSH）的广泛列表，在PubMed Central、Embase、循证医学综述、护理学与健康领域数据库、心理学文摘数据库和Scopus中进行全面系统的检索。
59篇系统评价符合纳入标准并被纳入最终分析。分析确定了九个与消费者和社区参与相关的不同概念：共同决策、自我管理、医疗保健系统中的消费者和社区参与、基于社区的健康促进、提供医疗保健服务、康复、参与研究、研究设计与实施中的合作以及同伴支持。所确定的概念在活动目的、消费者角色和专业人员参与类型等许多方面彼此不同。每个概念都由一系列术语描述，有些术语为不同概念所共有。此外，还识别出以患者为中心和患者赋权这两个重叠概念。
本研究描述了与消费者和社区参与相关的关键概念，并为它们与不同的消费者和社区参与相关术语之间的关系提供了新见解。确定与消费者和社区参与相关的关键概念和术语将有助于聚焦未来的研究和举措，并加强与消费者和社区参与相关证据的产出。
