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对当代关于痴呆症患者环境辅助生活技术伦理的研究综述。

A review of contemporary work on the ethics of ambient assisted living technologies for people with dementia.

作者信息

Novitzky Peter, Smeaton Alan F, Chen Cynthia, Irving Kate, Jacquemard Tim, O'Brolcháin Fiachra, O'Mathúna Dónal, Gordijn Bert

机构信息

Institute of Ethics, Dublin City University, Henry Grattan Building, Glasnevin, Dublin 9, Ireland,

出版信息

Sci Eng Ethics. 2015 Jun;21(3):707-65. doi: 10.1007/s11948-014-9552-x. Epub 2014 Jun 19.

Abstract

Ambient assisted living (AAL) technologies can provide assistance and support to persons with dementia. They might allow them the possibility of living at home for longer whilst maintaining their comfort and security as well as offering a way towards reducing the huge economic and personal costs forecast as the incidence of dementia increases worldwide over coming decades. However, the development, introduction and use of AAL technologies also trigger serious ethical issues. This paper is a systematic literature review of the on-going scholarly debate about these issues. More specifically, we look at the ethical issues involved in research and development, clinical experimentation, and clinical application of AAL technologies for people with dementia and related stakeholders. In the discussion we focus on: (1) the value of the goals of AAL technologies, (2) the special vulnerability of persons with dementia in their private homes, (3) the complex question of informed consent for the usage of AAL technologies.

摘要

环境辅助生活(AAL)技术可以为痴呆症患者提供帮助和支持。这些技术可能使他们有机会更长时间地居家生活,同时保持舒适和安全,还提供了一种方式来降低随着未来几十年全球痴呆症发病率上升而预计产生的巨大经济和个人成本。然而,AAL技术的开发、引入和使用也引发了严重的伦理问题。本文是对关于这些问题的正在进行的学术辩论的系统文献综述。更具体地说,我们研究了AAL技术在针对痴呆症患者及相关利益相关者的研发、临床试验和临床应用中涉及的伦理问题。在讨论中,我们关注:(1)AAL技术目标的价值,(2)痴呆症患者在其私人住宅中的特殊脆弱性,(3)AAL技术使用的知情同意这一复杂问题。

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