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2
The socioeconomic consequences of multiple sclerosis: a controlled national study.多发性硬化症的社会经济后果:一项对照性全国研究。
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Hospitalization in Parkinson disease: a survey of National Parkinson Foundation Centers.帕金森病住院情况:全国帕金森基金会中心调查。
Parkinsonism Relat Disord. 2011 Jul;17(6):440-5. doi: 10.1016/j.parkreldis.2011.03.002. Epub 2011 Apr 1.
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The economic burden of Medicare-eligible patients by multiple sclerosis type.多发性硬化症患者的医疗保险资格的经济负担。
Value Health. 2011 Jan;14(1):61-9. doi: 10.1016/j.jval.2010.10.022.
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Caregiver perceptions associated with risk of nursing home admission for people with multiple sclerosis.与多发性硬化症患者入住养老院风险相关的照顾者认知。
Disabil Health J. 2010 Apr;3(2):117-24. doi: 10.1016/j.dhjo.2009.08.003. Epub 2009 Nov 3.
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Economic burden of multiple sclerosis: a systematic review of the literature.多发性硬化症的经济负担:文献系统综述。
Pharmacoeconomics. 2010;28(5):363-79. doi: 10.2165/11532230-000000000-00000.
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"They do what they think is the best for me." Frail elderly patients' preferences for participation in their care during hospitalization.“他们做了他们认为对我最好的事情。”虚弱的老年住院患者对参与自身照护的偏好。
Patient Educ Couns. 2010 Aug;80(2):233-40. doi: 10.1016/j.pec.2009.10.026. Epub 2009 Nov 30.
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Being hopeful and continuing to move ahead: religious coping in Iranian chemical warfare poisoned veterans, a qualitative study.抱有希望并继续前进:伊朗化学战中毒退役军人的宗教应对方式,一项定性研究。
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9
Multiple sclerosis.多发性硬化症
Lancet. 2008 Oct 25;372(9648):1502-17. doi: 10.1016/S0140-6736(08)61620-7.
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Multiple sclerosis in the UK: service use, costs, quality of life and disability.英国的多发性硬化症:服务利用、成本、生活质量与残疾情况
Pharmacoeconomics. 2008;26(10):847-60. doi: 10.2165/00019053-200826100-00005.

多发性硬化症患者的住院经历:一项定性研究。

Experiences of hospitalization in patients with multiple sclerosis: A qualitative study.

作者信息

Ghafari Somayeh, Fallahi-Khoshknab Masoud, Norouzi Kian, Mohamadi Eisa

机构信息

Department of Nursing, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.

Department of Nursing, Tarbiat Modares University, Tehran, Iran.

出版信息

Iran J Nurs Midwifery Res. 2014 May;19(3):255-61.

PMID:24949063
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4061625/
Abstract

BACKGROUND

Patients with multiple sclerosis experience hospitalization several times in their lives. Certainly, providing efficient and high-quality care by healthcare professionals is not possible unless the experiences of patients' hospitalization are taken into consideration. This qualitative study was aimed to identify experiences of patients with multiple sclerosis in their hospitalization.

MATERIALS AND METHODS

A qualitative content analysis method was used to conduct this study. The study participants were 25 patients with multiple sclerosis, who were chosen by purposeful sampling. Data were collected through non-structured interviews.

RESULTS

The analysis resulted in the emergence of 4 themes and 11 subthemes. The main themes were: Religiosity, emotional reactions, seeking support, and feeling of being in a cage.

CONCLUSIONS

Awareness of families and healthcare providers of the reactions of patients with multiple sclerosis to hospitalization will help them to deal effectively with patients and to improve relationships with them. However, by understanding the patients' experiences, the practitioners gain expertise and can join in the patients' health journey in a therapeutic way during the hospitalization period. In addition, the findings can serve to create a framework for developing nursing care processes including informational and supporting programs for multiple sclerosis patients during hospitalization while taking into consideration patients' needs and cultural backgrounds.

摘要

背景

多发性硬化症患者一生中会多次住院。当然,除非考虑到患者的住院经历,医疗保健专业人员不可能提供高效和高质量的护理。这项定性研究旨在确定多发性硬化症患者的住院经历。

材料与方法

本研究采用定性内容分析法。研究参与者为25例多发性硬化症患者,采用目的抽样法选取。通过非结构化访谈收集数据。

结果

分析得出4个主题和11个子主题。主要主题为:宗教信仰、情绪反应、寻求支持和被困感。

结论

了解多发性硬化症患者对住院的反应,将有助于患者家属和医疗保健提供者有效地应对患者,并改善与他们的关系。然而,通过了解患者的经历,从业者可以获得专业知识,并在住院期间以治疗性的方式参与患者的健康之旅。此外,研究结果可为制定护理流程框架提供参考,包括在住院期间为多发性硬化症患者提供信息和支持项目,同时考虑患者的需求和文化背景。