Tehranineshat Banafsheh, Yektatalab Shahrzad, Momennasab Marzieh, Bijani Mostafa, Mohammadi Fateme
Community-Based Psychiatric Care Research Center, Department of Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran.
Community-Based Psychiatric Care Research Center, Department of Mental Health and Psychiatric Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, Iran.
Patient Prefer Adherence. 2020 Jul 13;14:1159-1172. doi: 10.2147/PPA.S257746. eCollection 2020.
Being diagnosed with multiple sclerosis is usually accompanied by emotional trauma for patients and their families. The chronic, progressive, and unpredictable nature of the disease spells the patients' long-term need for care from their families. As soon as a diagnosis is made, family caregivers are faced with many challenges. The present study aims to identify family caregivers' experiences at the first hospitalization of their patients.
The present study is a work of qualitative research and uses the conventional content analysis approach. It lasted from July 2019 to March 2020. The subjects were selected via purposeful sampling. To collect data, the researchers conducted in-depth, semi-structured interviews with 18 family caregivers of patients with multiple sclerosis. The collected data were analyzed using MAXQDA 2007.
Analysis of the data yielded three themes: peaceful environment, need for continuing full support, and religion-based coping strategies.
The findings of the present study can be used to develop support programs that address family caregivers' problems and needs to assist them in accepting and coping with the conditions of their patients, thereby increasing the quality of care provided to patients with multiple sclerosis.
被诊断出患有多发性硬化症通常会给患者及其家人带来情感创伤。该疾病的慢性、渐进性和不可预测性意味着患者长期需要家人的照顾。一旦确诊，家庭照顾者就会面临诸多挑战。本研究旨在了解家庭照顾者在其患者首次住院期间的经历。
本研究是一项定性研究，采用传统的内容分析法。研究从2019年7月持续至2020年3月。通过目的抽样选择研究对象。为收集数据，研究人员对18位多发性硬化症患者的家庭照顾者进行了深入的半结构化访谈。使用MAXQDA 2007对收集到的数据进行分析。
数据分析得出三个主题：宁静的环境、持续全面支持的需求以及基于宗教的应对策略。
本研究的结果可用于制定支持项目，以解决家庭照顾者的问题和需求，帮助他们接受并应对患者的状况，从而提高为多发性硬化症患者提供的护理质量。
