脑瘫患儿及其家庭的健康相关生活质量。
Health-related quality of life in children with cerebral palsy and their families.
作者信息
Dobhal Manjusha, Juneja Monica, Jain Rahul, Sairam Smitha, Thiagarajan D
机构信息
Santosh College of Physiotherapy, Santosh Medical College and Hospital, Ghaziabad, UP; and Child Development Center, Maulana Azad Medical College, New Delhi; India. Correspondence to: Prof Monica Juneja, C-77, South Extension -II, New Delhi 110 049, India.
出版信息
Indian Pediatr. 2014 May;51(5):385-7. doi: 10.1007/s13312-014-0414-z.
OBJECTIVE
To determine the health-related quality of life in children with cerebral palsy and their families.
METHODS
One hundred children (3-10 years of age) receiving regular rehabilitation therapy for cerebral palsy for last 1 year at a Child Development Centrer were enrolled and the Lifestyle assessment questionnaire - cerebral palsy was administered to the parents.
RESULTS
9% had good, 24% had mildly-affected, 37% had moderately-affected and 30% had severely-affected health-related quality of life. The physical independence, mobility and social integration dimensions were much more severely affected than the clinical burden, economic burden and schooling dimensions.
CONCLUSION
Health-related quality of child is affected in most children with cerebral palsy.
目的
确定脑瘫患儿及其家庭与健康相关的生活质量。
方法
选取在儿童发展中心接受了为期1年常规脑瘫康复治疗的100名3至10岁儿童，并向其父母发放了生活方式评估问卷——脑瘫版。
结果
9%的患儿与健康相关的生活质量良好，24%的患儿受到轻度影响，37%的患儿受到中度影响，30%的患儿受到重度影响。身体独立性、活动能力和社会融合维度比临床负担、经济负担和教育维度受到的影响要严重得多。
结论
大多数脑瘫患儿与健康相关的生活质量受到影响。
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