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脑瘫学龄儿童活动受限与健康相关生活质量的关系:一项横断面研究。

Relationship between activity limitation and health-related quality of life in school-aged children with cerebral palsy: a cross-sectional study.

作者信息

Park Eun-Young

机构信息

Department of Secondary Special Education, College of Education, Jeonju University, 1200 3-ga, Hyoja-dong, Wansan-gu, Jeonju, 560-759, South Korea.

出版信息

Health Qual Life Outcomes. 2017 Apr 28;15(1):87. doi: 10.1186/s12955-017-0650-8.

Abstract

BACKGROUND

Information on health-related quality of life is becoming increasingly important in children with cerebral palsy. This study investigated the relationship between activity limitation and health-related quality of life in school-aged children with cerebral palsy.

METHODS

Data were collected from 71 children aged 6-15 years with cerebral palsy. Activity limitations were assessed using functional classification systems, including the Korean-Gross Motor Function Classification System (K-GMFCS) and the Korean-Manual Ability Classification System (K-MACS). Health-related quality of life was assessed using the Korean version of the Childhood Health Assessment Questionnaire. Physical therapists collected the data by interviewing the parents of the subjects.

RESULTS

Both the K-GMFCS and the K-MACS were significantly positively correlated with the Childhood Health Assessment Questionnaire. The Childhood Health Assessment Questionnaire score differed significantly with respect to the functional classification systems. The differences in the ratings according to the K-GMFCS levels were significant, except those between levels I and II, levels II and III, levels III and IV, and levels IV and V. In the K-MACS, there were no significant differences between levels I and II, levels III and IV, and levels IV and V. The K-GMFCS and the K-MACS were significant predictors of health-related quality of life, demonstrating 75.5% of the variance (p < 0.05).

CONCLUSION

Comprehensive information on children with cerebral palsy should be gathered to provide professionals with a better understanding of health-related quality of life.

摘要

背景

与健康相关的生活质量信息在脑瘫儿童中变得越来越重要。本研究调查了学龄期脑瘫儿童活动受限与健康相关生活质量之间的关系。

方法

收集了71名6至15岁脑瘫儿童的数据。使用功能分类系统评估活动受限情况,包括韩国粗大运动功能分类系统(K-GMFCS)和韩国手动能力分类系统(K-MACS)。使用韩国版儿童健康评估问卷评估与健康相关的生活质量。物理治疗师通过采访受试者的父母收集数据。

结果

K-GMFCS和K-MACS均与儿童健康评估问卷显著正相关。儿童健康评估问卷得分在功能分类系统方面存在显著差异。根据K-GMFCS水平的评分差异显著,但I级和II级、II级和III级、III级和IV级以及IV级和V级之间除外。在K-MACS中,I级和II级、III级和IV级以及IV级和V级之间没有显著差异。K-GMFCS和K-MACS是健康相关生活质量的显著预测因素,解释了75.5%的方差(p < 0.05)。

结论

应收集脑瘫儿童的综合信息,以便专业人员更好地了解与健康相关的生活质量。

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The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers.照顾脑瘫患儿的影响:父母的生活质量
Child Care Health Dev. 2010 Jan;36(1):63-73. doi: 10.1111/j.1365-2214.2009.00989.x. Epub 2009 Aug 21.
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The relationship between quality of life and functioning for children with cerebral palsy.脑瘫患儿的生活质量与功能之间的关系。
Dev Med Child Neurol. 2008 Mar;50(3):199-203. doi: 10.1111/j.1469-8749.2008.02031.x. Epub 2008 Jan 21.

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