Savas Peter, Robertson Amanda, Beatty Lisa, Hookings Emily, McGee Margaret, Marker Julie, McCaleb Belle, Bowen Joanne, Richards Alison, Koczwara Bogda
Department of Medical Oncology, Flinders Centre for Innovation in Cancer, Flinders Medical Centre and Flinders University, Bedford Park, South Australia, Australia.
Faculty of Health Sciences, Flinders University, Bedford Park, South Australia, Australia.
Asia Pac J Clin Oncol. 2016 Jun;12(2):e311-8. doi: 10.1111/ajco.12226. Epub 2014 Jun 28.
Complementary therapy use by patients with cancer is highly prevalent, although little is known about the optimal model of integration with conventional care. This study explored patient preferences regarding integration in an Australian context.
Cancer patients participated in focus groups conducted by an experienced facilitator. Transcripts of discussions were subjected to thematic analysis.
Fourteen female and four male patients took part in eight focus groups. Eleven had received conventional cancer treatment for early-stage disease, and seven for advanced stage. Participants had sound understanding of the distinction between complementary and alternative medicines. There were differing views on whether complementary therapy and conventional cancer services should be colocated. Some participants described colocation as discordant with their reasons for using complementary therapy. Participants valued guidance from oncology health professionals regarding complementary therapy that was tailored to their individual needs. In addition to medical oncologists, nursing staff and affiliated complementary therapists were considered to be appropriate sources for guidance. Additional themes identified in the analysis were also informative: patients achieve autonomy and self-expression through complementary therapies; the knowledge and attitudes of health professionals and limited consultation time are barriers to integration; self-funding of complementary therapies is acceptable to participants.
The study findings suggest that while patients have diverse views regarding the optimal integration model, there is no strong preference for geographic colocation of complementary therapy with conventional cancer care. Patients valued personalized information and guidance regarding complementary therapy from health professionals involved in their cancer care.
癌症患者使用补充疗法的情况非常普遍,尽管对于与传统治疗相结合的最佳模式知之甚少。本研究在澳大利亚背景下探讨了患者对整合的偏好。
癌症患者参加了由经验丰富的主持人主持的焦点小组讨论。对讨论记录进行了主题分析。
14名女性和4名男性患者参加了8个焦点小组。11人接受过早期疾病的传统癌症治疗,7人接受过晚期疾病的治疗。参与者对补充医学和替代医学之间的区别有清晰的理解。对于补充疗法和传统癌症服务是否应在同一地点提供,存在不同的观点。一些参与者认为在同一地点提供与他们使用补充疗法的原因不一致。参与者重视肿瘤健康专业人员针对其个人需求提供的关于补充疗法的指导。除了医学肿瘤学家外,护理人员和附属的补充疗法治疗师也被认为是合适的指导来源。分析中确定的其他主题也很有启发性:患者通过补充疗法实现自主和自我表达;健康专业人员的知识和态度以及有限的咨询时间是整合的障碍;参与者可以接受自费进行补充疗法。
研究结果表明,虽然患者对最佳整合模式有不同的看法,但对于补充疗法与传统癌症护理在地理位置上的同地设置并没有强烈的偏好。患者重视参与其癌症护理的健康专业人员提供的关于补充疗法的个性化信息和指导。