解读慢性意识障碍：医学与家庭体验
Interpreting chronic disorders of consciousness: medical science and family experience.
作者信息
Edgar Andrew, Kitzinger Celia, Kitzinger Jenny
机构信息
Centre for Applied Ethics, Cardiff University, Cardiff, UK.
出版信息
J Eval Clin Pract. 2015 Jun;21(3):374-9. doi: 10.1111/jep.12220. Epub 2014 Jul 4.
RATIONALE, AIMS AND OBJECTIVES: Chronic disorders of consciousness (CDoC) pose significant problems of understanding for both medical professionals and the relatives and friends of the patient. This paper explores the tensions between the different interpretative resources that are drawn upon by lay people and professionals in their response to CDoC.
METHODS
A philosophical analysis of data from 51 interviews with people who have relatives who are (or have been) in a vegetative or minimally conscious state.
RESULTS
The medical specialist and the lay person tend to draw on two different interpretative frameworks: a medical science framework, which tends to construct the patient in terms of measurable physical parameters, and an interpretative framework that encompasses the uniqueness of the patient and the relative's relationship to them as a social being.
CONCLUSIONS
These differences potentially lead to ruptures in communication between medical professionals and relatives such that that an increased self-consciousness of the framing assumptions being made will facilitate communication and enrich understanding of CDoCs.
基本原理、目的与目标：慢性意识障碍（CDoC）给医学专业人员以及患者的亲朋好友都带来了重大的理解难题。本文探讨了外行人与专业人员在应对CDoC时所采用的不同解释资源之间的矛盾。
方法
对51名亲属处于（或曾经处于）植物人或微意识状态的人员进行访谈，并进行哲学分析。
结果
医学专家和外行人倾向于采用两种不同的解释框架：一种是医学科学框架，倾向于根据可测量的身体参数来构建患者；另一种是解释框架，涵盖患者的独特性以及亲属作为社会个体与患者的关系。
结论
这些差异可能导致医学专业人员与亲属之间的沟通破裂，因此增强对所做框架假设的自我意识将有助于沟通，并丰富对慢性意识障碍的理解。
Zotero 插件