Jalmsell Li, Kontio Taru, Stein Maria, Henter Jan-Inge, Kreicbergs Ulrika
a Centre for Research Ethics & Bioethics, Department of Health and Caring Sciences , Uppsala Universitet , Uppsala , Sweden.
Death Stud. 2015 Jan-Jun;39(1-5):111-7. doi: 10.1080/07481187.2014.913086. Epub 2014 Nov 25.
Open and honest communication has been identified as an important factor in providing good palliative care. However, there is no easy solution to if, when, and how parents and a dying child should communicate about death. This article reports how bereaved parents communicated about death with their child, dying from a malignancy. Communication was often initiated by the child and included communication through narratives such as fairy tales and movies and talking more directly about death itself. Parents also reported that their child prepared for death by giving instructions about his or her grave or funeral and giving away toys.
开放和坦诚的沟通已被视为提供优质姑息治疗的一个重要因素。然而,对于父母与濒死儿童应在何时、以何种方式以及是否就死亡进行沟通,并没有简单的解决办法。本文报道了失去孩子的父母如何与身患恶性疾病濒死的孩子谈论死亡。沟通往往由孩子发起,包括通过童话故事和电影等叙述方式进行交流,以及更直接地谈论死亡本身。父母们还报告说,他们的孩子通过对自己的坟墓或葬礼做出指示以及赠送玩具来为死亡做准备。