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制定公共政策,以推进大数据在医疗保健中的应用。

Developing public policy to advance the use of big data in health care.

机构信息

Axel Heitmueller is policy fellow of the Big Data and Health Forum at the World Innovation for Summit for Health (WISH), Qatar Foundation, and an honorary fellow at the Centre for Health Policy, Institute of Global Health Innovation, Imperial College London, in the United Kingdom.

Sarah Henderson is head of forum development at WISH and a policy fellow at the Institute of Global Health Innovation, Imperial College London.

出版信息

Health Aff (Millwood). 2014 Sep;33(9):1523-30. doi: 10.1377/hlthaff.2014.0771.

Abstract

The vast amount of health data generated and stored around the world each day offers significant opportunities for advances such as the real-time tracking of diseases, predicting disease outbreaks, and developing health care that is truly personalized. However, capturing, analyzing, and sharing health data is difficult, expensive, and controversial. This article explores four central questions that policy makers should consider when developing public policy for the use of "big data" in health care. We discuss what aspects of big data are most relevant for health care and present a taxonomy of data types and levels of access. We suggest that successful policies require clear objectives and provide examples, discuss barriers to achieving policy objectives based on a recent policy experiment in the United Kingdom, and propose levers that policy makers should consider using to advance data sharing. We argue that the case for data sharing can be won only by providing real-life examples of the ways in which it can improve health care.

摘要

每天全球产生和存储的大量健康数据为疾病的实时跟踪、预测疾病爆发以及开发真正个性化的医疗保健等方面提供了重大机会。然而,获取、分析和共享健康数据既困难又昂贵,而且颇具争议。本文探讨了政策制定者在制定医疗保健中使用“大数据”的公共政策时应考虑的四个核心问题。我们讨论了大数据中与医疗保健最相关的方面,并提出了数据类型和访问级别分类法。我们认为,成功的政策需要明确的目标,并提供了一些实例,根据英国最近的一项政策实验,讨论了实现政策目标的障碍,并提出了政策制定者应该考虑用来推进数据共享的手段。我们认为,只有提供数据共享可以改善医疗保健的实际例子,才能赢得数据共享的案例。

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