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肌萎缩侧索硬化症的姑息治疗问题:一项基于证据的综述

Palliative Care Issues in Amyotrophic Lateral Sclerosis: An Evidenced-Based Review.

作者信息

Karam Chafic Y, Paganoni Sabrina, Joyce Nanette, Carter Gregory T, Bedlack Richard

机构信息

Department of Neurology, University of North Carolina School of Medicine, Chapel Hill, NC, USA

Harvard Medical School, Massachusetts General Hospital, Spaulding Rehabilitation Hospital, and Boston VA Healthcare System.

出版信息

Am J Hosp Palliat Care. 2016 Feb;33(1):84-92. doi: 10.1177/1049909114548719. Epub 2014 Sep 8.

Abstract

As palliative care physicians become increasingly involved in the care of patients with amyotrophic lateral sclerosis (ALS), they will be asked to provide guidance regarding the use of supplements, diet, exercise, and other common preventive medicine interventions. Moreover, palliative care physicians have a crucial role assisting patients with ALS in addressing health care decisions to maximize quality of life and cope with a rapidly disabling disease. It is therefore important for palliative care physicians to be familiar with commonly encountered palliative care issues in ALS. This article provides an evidenced-based review of palliative care options not usually addressed in national and international ALS guidelines.

摘要

随着姑息治疗医生越来越多地参与到肌萎缩侧索硬化症(ALS)患者的护理中,他们将被要求就补充剂的使用、饮食、运动及其他常见的预防医学干预措施提供指导。此外,姑息治疗医生在协助ALS患者做出医疗决策以最大限度提高生活质量并应对迅速致残的疾病方面发挥着关键作用。因此,姑息治疗医生熟悉ALS中常见的姑息治疗问题很重要。本文对国家和国际ALS指南中通常未涉及的姑息治疗选项进行了循证综述。

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