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利用人物角色根据冠心病患者的偏好定制教育信息。

Using personas to tailor educational messages to the preferences of coronary heart disease patients.

作者信息

Vosbergen S, Mulder-Wiggers J M R, Lacroix J P, Kemps H M C, Kraaijenhagen R A, Jaspers M W M, Peek N

机构信息

Department of Medical Informatics, Academic Medical Center, Amsterdam, The Netherlands.

Department of Medical Informatics, Academic Medical Center, Amsterdam, The Netherlands.

出版信息

J Biomed Inform. 2015 Feb;53:100-12. doi: 10.1016/j.jbi.2014.09.004. Epub 2014 Sep 17.

Abstract

PURPOSE

Although tailoring health education messages to individual characteristics of patients has shown promising results, most patient education materials still take a one-size-fits-all approach. The aim of this study was to develop a method for tailoring health education messages to patients' preferences for various message features, using the concept of personas. This is a preliminary study focused on education for coronary heart disease (CHD) patients.

METHODS

This study used a three-step approach. First, we created personas by (i) performing k-means cluster analysis on data from an online survey that assessed the preferences of 213 CHD patients for various message features and, (ii) creating a vivid description of the preferences per patient cluster in an iterative process with the research team. Second, we developed adaptation rules to tailor existing educational messages to the resulting personas. Third, we conducted a pilot validation by adapting nine existing educational messages to each of the personas. These messages and the resulting personas were then presented to a separate group of 38 CHD patients who visited the cardiology outpatient clinic. They were first asked to choose their most preferred, second most preferred, and least preferred persona. Subsequently, they were asked to rate three of the adapted messages; one for every of the persona choices.

RESULTS

We created five personas that pertained to five patient clusters. Personas varied mainly on preferences for medical or lay language, current or future temporal perspective, and including or excluding explicit health risks. Fifty-five different adaptation rules were developed, primarily describing adaptations to the message's perspective, level of detail, sentence structure, and terminology. Most participants in the validation study could identify with one of the five personas, although some of them found it hard to choose. On average, 68.5% of all participants rated the messages that matched their most preferred persona more positively than, or in the same way as, the messages that matched their least preferred persona.

CONCLUSIONS

The persona-based method developed in this study can be used to create a manageable set of patient-centered tailored messages, while additionally using the developed personas to assess patients' preferences.

摘要

目的

尽管根据患者的个体特征量身定制健康教育信息已显示出有前景的结果,但大多数患者教育材料仍采用一刀切的方法。本研究的目的是利用人物角色的概念,开发一种根据患者对各种信息特征的偏好来定制健康教育信息的方法。这是一项针对冠心病(CHD)患者教育的初步研究。

方法

本研究采用三步法。首先,我们通过以下方式创建人物角色:(i)对一项在线调查的数据进行k均值聚类分析,该调查评估了213名冠心病患者对各种信息特征的偏好;(ii)与研究团队在一个迭代过程中为每个患者聚类创建对偏好的生动描述。其次,我们制定了改编规则,以便根据生成的人物角色对现有的教育信息进行量身定制。第三,我们通过将九条现有的教育信息分别改编为每个人物角色进行了试点验证。然后将这些信息和生成的人物角色呈现给另一组38名到心脏病门诊就诊的冠心病患者。首先要求他们选择自己最喜欢、第二喜欢和最不喜欢的人物角色。随后,要求他们对三条改编后的信息进行评分;每个选择的人物角色对应一条信息。

结果

我们创建了五个与五个患者聚类相关的人物角色。人物角色的差异主要体现在对医学或通俗语言的偏好、当前或未来的时间视角以及是否包含明确的健康风险方面。制定了55条不同的改编规则,主要描述了对信息视角、细节程度、句子结构和术语的改编。验证研究中的大多数参与者能够认同五个人物角色中的一个,尽管他们中的一些人觉得难以选择。平均而言,所有参与者中有68.5%对与他们最喜欢的人物角色匹配的信息的评价比对与他们最不喜欢的人物角色匹配的信息更积极或相同。

结论

本研究中开发的基于人物角色的方法可用于创建一组易于管理的以患者为中心的量身定制信息,同时还可利用所开发的人物角色来评估患者的偏好。

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