Foley Kitty-Rose, Jacoby Peter, Einfeld Stewart, Girdler Sonya, Bourke Jenny, Riches Vivienne, Leonard Helen
BMC Psychiatry. 2014 Oct 3;14:266. doi: 10.1186/s12888-014-0266-z.
Young adults with Down syndrome experience increased rates of emotional and behavioural problems compared with the general population. Most adolescents with Down syndrome living in Western Australia participate in sheltered employment as their main day occupation. Relationship between day occupation and changes in behaviour has not been examined. Therefore, the aim of this research was to explore any relationship between post school day occupations and changes in the young person's behaviour.
The Down syndrome Needs Opinion Wishes database was used for case ascertainment of young adults aged 15 to 32 years with Down syndrome. Families of 118 young people in this population-based database completed questionnaires in 2004, 2009 and 2011. The questionnaires addressed both young person characteristics such as age, gender, presence of impairments, behaviour, functioning in activities of daily living, and family characteristics such as income and family functioning. Post-school day occupations in which the young people were participating included open and sheltered employment, training and day recreation programs. Change in behaviour of young adults who remained in the same post-school day occupation from 2009 to 2011 (n = 103) were examined in a linear regression model adjusting for confounding variables including age, gender, prior functioning and behaviour in 2004 and family income.
In comparison to those young adults attending open employment from 2009 to 2011, those attending day recreation programs were reported to experience worsening in behaviour both in the unadjusted (effect size -0.14, 95% CI -0.24, -0.05) and adjusted models (effect size -0.15, 95% CI -0.29, -0.01).
We found that the behaviour of those participating in open employment improved compared to those attending other day occupations. Further examination of the direction of this association is required.
与普通人群相比，患有唐氏综合征的年轻人出现情绪和行为问题的几率更高。大多数生活在西澳大利亚的患有唐氏综合征的青少年以庇护性就业作为他们主要的日常活动。日常活动与行为变化之间的关系尚未得到研究。因此，本研究的目的是探讨毕业后的日常活动与年轻人行为变化之间的任何关系。
使用唐氏综合征需求意见愿望数据库来确定年龄在15至32岁之间患有唐氏综合征的年轻人。该基于人群的数据库中的118名年轻人的家庭在2004年、2009年和2011年完成了问卷调查。问卷涉及年轻人的特征，如年龄、性别、损伤情况、行为、日常生活活动功能，以及家庭特征，如收入和家庭功能。年轻人参与的毕业后日常活动包括开放式就业、庇护性就业、培训和日间娱乐项目。对2009年至2011年从事相同毕业后日常活动的年轻人（n = 103）的行为变化进行了线性回归模型分析，对包括年龄、性别、2004年的先前功能和行为以及家庭收入等混杂变量进行了调整。
与2009年至2011年从事开放式就业的年轻人相比，参与日间娱乐项目的年轻人在未调整模型（效应量 -0.14，95%置信区间 -0.24，-0.05）和调整模型（效应量 -0.15，95%置信区间 -0.29，-0.01）中均被报告行为变差。
我们发现，与从事其他日常活动的年轻人相比，参与开放式就业的年轻人的行为有所改善。需要进一步研究这种关联的方向。
