Foley Kitty-Rose, Girdler Sonya, Bourke Jenny, Jacoby Peter, Llewellyn Gwynnyth, Einfeld Stewart, Tonge Bruce, Parmenter Trevor R, Leonard Helen
Telethon Kids Institute, University of Western Australia, Perth, Australia; Department of Developmental Disability Neuropsychiatry, School of Psychiatry, The University of New South Wales, Sydney, Australia.
School of Occupational Therapy and Social Work, Curtin University, Perth, Australia.
PLoS One. 2014 Sep 26;9(9):e108413. doi: 10.1371/journal.pone.0108413. eCollection 2014.
The concept of disability is now understood as a result of the interaction between the individual, features related to impairment, and the physical and social environment. It is important to understand these environmental influences and how they affect social participation. The purpose of this study is to describe the social participation of young adults with Down syndrome and examine its relationship with the physical and social environment.
Families ascertained from the Down syndrome 'Needs Opinion Wishes' database completed questionnaires during 2011. The questionnaires contained two parts, young person characteristics and family characteristics. Young adults' social participation was measured using the Assessment of Life Habits (LIFE-H) and the influences of environmental factors were measured by the Measure of the Quality of the Environment (MQE). The analysis involved descriptive statistics and linear and logistic regression.
Overall, participation in daily activities was higher (mean 6.45) than in social roles (mean 5.17) (range 0 to 9). When the physical and/or social environment was reported as a facilitator, compared to being no influence or a barrier, participation in social roles was greater (coef 0.89, 95%CI 0.28, 1.52, coef 0.83, 95%CI 0.17, 1.49, respectively). The relationships between participation and both the physical (coef 0.60, 95% CI -0.40, 1.24) and social (coef 0.20, 95%CI -0.47, 0.87) environments were reduced when age, gender, behavior and functioning in ADL were taken into account.
We found that young adults' participation in social roles was influenced more by the physical environment than by the social environment, providing a potentially modifiable avenue for intervention.
现在认为残疾的概念是个体、与损伤相关的特征以及身体和社会环境之间相互作用的结果。了解这些环境影响以及它们如何影响社会参与非常重要。本研究的目的是描述唐氏综合征青年的社会参与情况，并研究其与身体和社会环境的关系。
从唐氏综合征“需求意见愿望”数据库中确定的家庭在2011年完成了问卷调查。问卷包括两部分，即年轻人特征和家庭特征。使用生活习惯评估量表（LIFE-H）测量年轻人的社会参与情况，使用环境质量测量量表（MQE）测量环境因素的影响。分析包括描述性统计以及线性和逻辑回归。
总体而言，日常活动参与度（平均6.45）高于社会角色参与度（平均5.17）（范围为0至9）。当身体和/或社会环境被报告为促进因素时，与无影响或障碍相比，社会角色参与度更高（系数分别为0.89，95%置信区间0.28，1.52；系数0.83，95%置信区间0.17，1.49）。在考虑年龄、性别、行为和日常生活活动功能后，参与度与身体环境（系数0.60，95%置信区间-0.40，1.24）和社会环境（系数0.20，95%置信区间-0.47，0.87）之间的关系减弱。
我们发现，唐氏综合征青年的社会角色参与度受身体环境的影响大于社会环境，这为干预提供了一个潜在的可改变途径。
