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肝移植后儿童和青少年的家庭压力及其与心理社会功能障碍的关系。

Family strain and its relation to psychosocial dysfunction in children and adolescents after liver transplantation.

作者信息

Kaller T, Petersen I, Petermann F, Fischer L, Grabhorn E, Schulz K-H

机构信息

Center of Clinical Psychology and Rehabilitation, University Bremen, Bremen, Germany.

出版信息

Pediatr Transplant. 2014 Dec;18(8):851-9. doi: 10.1111/petr.12367. Epub 2014 Oct 12.

Abstract

Parental functioning is essential to children's development. Therefore, this cross-sectional single-center study examined the prevalence of family strain in 181 parents and its associations to psychosocial functioning in their children after LT. Median age at LT was one yr. Mean time elapsed since LT was 5.8 yr. The IFS, and the SDQ were applied to parents. Family strain in the present sample was comparable to that in the German normative group of families with a chronically ill or disabled child, but families of LT recipients showed a significantly higher financial impact, impact on coping, and impact on siblings (p < 0.001). Younger age of patients at survey, a more severe clinical course, child's restrictions, and financial losses following LT were determined as significant predictors of family strain (R(2)  = 0.42). Parents reported less family strain after living-related compared with deceased donation. Family strain was significantly correlated to psychosocial dysfunction in children post-LT. Present findings demonstrate a risk of maladjustment to the post-LT condition in families. They emphasize the importance of psychological assessment of parents and patients during transplant and follow-up to ensure the best achievable long-term outcome of patients.

摘要

父母的功能对于儿童的发育至关重要。因此,这项横断面单中心研究调查了181名父母中家庭压力的患病率及其与肝移植后子女心理社会功能的关联。肝移植时的中位年龄为1岁。肝移植后的平均时间为5.8年。对父母应用了家庭功能量表(IFS)和优势与困难问卷(SDQ)。本样本中的家庭压力与德国患有慢性病或残疾儿童的家庭的正常对照组相当,但肝移植受者家庭在经济影响、应对影响和对兄弟姐妹的影响方面显著更高(p < 0.001)。调查时患者年龄较小、临床病程更严重、儿童受限以及肝移植后的经济损失被确定为家庭压力的显著预测因素(R² = 0.42)。与尸体供肝移植相比,活体供肝移植后父母报告的家庭压力较小。家庭压力与肝移植后儿童的心理社会功能障碍显著相关。目前的研究结果表明家庭存在肝移植后适应不良的风险。它们强调了在移植及随访期间对父母和患者进行心理评估的重要性,以确保患者获得最佳的长期预后。

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