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[儿童肝移植的结果;家长的看法]

[Results of liver transplantation in children; parents' opinion].

作者信息

Bijstra J O, Tijmstra T, Heyink J W, Bijleveld C M, Slooff M J

机构信息

Rijksuniversiteit, vakgroep Gezondheidswetenschappen, Groningen.

出版信息

Ned Tijdschr Geneeskd. 1991 Sep 7;135(36):1639-42.

PMID:1922502
Abstract

Since 1982, the liver transplantation team of the University Hospital of Groningen has been carrying out transplantations in children. This article focuses on the experiences of the parents of 19 children who have undergone transplantation. An interview and two questionnaires were used to collect the data. Data concerned children's physical and psychosocial functioning and their daily behaviour. Five older children also filled in two questionnaires. In general, parents were positive about their child's functioning. When the interviews were analysed at an individual level, several problems were reported, however. These problems did not fall within one specific domain. As a consequence, the questionnaires did not show any significant differences between these children and a matched control group of healthy children. The parents of the children aged 1-3 yr were more positive about their children's functioning than the parents of the children aged 4-12 yr. The positive results should be assessed in the light of children's functioning before transplantation: when compared with pre-transplantation problems, present problems are of little significance.

摘要

自1982年以来,格罗宁根大学医院的肝移植团队一直在开展儿童肝移植手术。本文聚焦于19名接受过移植手术儿童的家长的经历。通过一次访谈和两份问卷来收集数据。数据涉及儿童的身体和心理社会功能及其日常行为。五名年龄稍大的儿童也填写了两份问卷。总体而言,家长们对孩子的功能状况持积极态度。然而,在对访谈进行个体层面分析时,报告了一些问题。这些问题并不局限于某一特定领域。因此,问卷显示这些儿童与一组匹配的健康儿童对照组之间没有任何显著差异。1至3岁儿童的家长对孩子功能状况的评价比4至12岁儿童的家长更为积极。这些积极结果应根据儿童移植前的功能状况来评估:与移植前的问题相比,目前的问题意义不大。

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