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非裔美国患者对肾脏疾病的认知:对晚期慢性肾病患者的定性研究

African American patient knowledge of kidney disease: A qualitative study of those with advanced chronic kidney disease.

作者信息

Kazley Abby S, Johnson Emily, Simpson Kit, Chavin Kenneth, Baliga Prabhakar

机构信息

Department of Health Care Leadership and Management, Medical University of South Carolina, Charleston, USA

Department of Health Science and Research, Medical University of South Carolina, Charleston, USA.

出版信息

Chronic Illn. 2015 Dec;11(4):245-55. doi: 10.1177/1742395314556658. Epub 2014 Oct 21.

Abstract

Kidney disease is a costly and prevalent condition that affects African Americans more than any other group. The purpose of this study was to determine the knowledge of kidney disease African American patients have about their disease. Four qualitative focus groups were conducted with kidney disease patients in which the patients gave thoughts and opinions on kidney disease and various components and factors of the condition. The data were independently reviewed and analyzed using Qualrus coding software. Dominant themes discussed in the focus groups included: causes of kidney disease, patient thoughts on dialysis as a treatment for kidney disease, information source for disease knowledge, thoughts on God and faith, reaction to kidney disease, and types of treatment available. The study found that the majority of patients were unaware of specific causes and risk factors of kidney disease, were unsure of available treatments, and had a severe lack of knowledge and support system in dealing with the condition. Early prevention and education programs aimed at high-risk populations would be very beneficial in decreasing the incidence and increase of kidney disease.

摘要

肾脏疾病是一种代价高昂且普遍存在的疾病,对非裔美国人的影响超过其他任何群体。本研究的目的是确定非裔美国肾脏疾病患者对其疾病的了解程度。对肾脏疾病患者进行了四个定性焦点小组访谈,患者们对肾脏疾病以及该病症的各种组成部分和因素发表了想法和意见。使用Qualrus编码软件对数据进行了独立审查和分析。焦点小组讨论的主要主题包括:肾脏疾病的病因、患者对透析作为肾脏疾病治疗方法的看法、疾病知识的信息来源、对上帝和信仰的看法、对肾脏疾病的反应以及可用的治疗类型。研究发现,大多数患者不知道肾脏疾病的具体病因和风险因素,不确定可用的治疗方法,并且在应对该病症方面严重缺乏知识和支持系统。针对高危人群的早期预防和教育项目对于降低肾脏疾病的发病率和增加治愈率将非常有益。

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