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头部受伤后第一年家庭转变的叙述:未受伤成员的观点

Narratives of family transition during the first year post-head injury: perspectives of the non-injured members.

作者信息

Whiffin Charlotte Jane, Bailey Christopher, Ellis-Hill Caroline, Jarrett Nickey, Hutchinson Peter J

机构信息

University of Derby Derbyshire Chambers and Business Link, Canal Wharf, Chesterfield, UK.

出版信息

J Adv Nurs. 2015 Apr;71(4):849-59. doi: 10.1111/jan.12551. Epub 2014 Oct 23.

DOI:10.1111/jan.12551
PMID:25339079
Abstract

AIM

To explore the narratives created by non-injured family members in relation to themselves and their family in the first year after head injury.

BACKGROUND

A head injury is a potentially devastating injury. The family responds to this injury by supporting the individual and their recovery. While the perspective of individual family members has been well documented, there is growing interest in how the family as a whole makes sense of their experiences and how these experiences change over time.

DESIGN

Longitudinal narrative case study using unstructured in-depth interviews.

METHODS

Data were collected during an 18-month period (August 2009-December 2010). Nine non-injured family members from three families were recruited from an acute neurosurgical ward and individual narrative interviews were held at one, three and 12 months postinjury where participants were asked to talk about their experience of head injury. Analysis was completed on three levels: the individual; the family and between family cases with the aim of identifying a range of interwoven narrative threads.

FINDINGS

Five interwoven narratives were identified: trauma, recovery, autobiographical, suffering and family. The narrative approach emphasized that the year post-head injury was a turbulent time for families, who were active agents in the process of change.

CONCLUSION

This study has shown the importance of listening to people's stories and understanding their journeys irrespective of the injured person's outcome. Change postinjury is not limited to the injured person: family members need help to understand that they too are changing as a result of their experiences.

摘要

目的

探讨颅脑损伤后第一年未受伤家庭成员关于自身及家庭所构建的叙事。

背景

颅脑损伤是一种潜在的毁灭性损伤。家庭通过支持个体及其康复来应对这种损伤。虽然个体家庭成员的观点已有充分记录,但人们越来越关注整个家庭如何理解他们的经历以及这些经历如何随时间变化。

设计

采用非结构化深度访谈的纵向叙事案例研究。

方法

在18个月期间(2009年8月至2010年12月)收集数据。从急性神经外科病房招募了来自三个家庭的九名未受伤家庭成员,并在受伤后1个月、3个月和12个月进行了个体叙事访谈,要求参与者谈论他们的颅脑损伤经历。分析在三个层面上完成:个体层面;家庭层面以及家庭案例之间,目的是识别一系列相互交织的叙事线索。

结果

识别出五个相互交织的叙事:创伤、康复、自传体、痛苦和家庭。叙事方法强调颅脑损伤后的一年对家庭来说是动荡的时期,他们是变化过程中的积极参与者。

结论

本研究表明了倾听人们的故事并理解他们的历程的重要性,而不论受伤者的结果如何。受伤后的变化不仅限于受伤者:家庭成员需要帮助来理解他们也因自身经历而在发生变化。

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