Kanatas Anastasios, Lowe Derek, Velikova Galina, Roe Brenda, Horgan Kieran, Shaw Richard J, Rogers Simon N
Tumori. 2014 Sep-Oct;100(5):568-79. doi: 10.1700/1660.18184.
In breast cancer (BC) there are different therapies available with different side effects affecting the health-related quality of life (HRQOL) of patients. Here we report a novel tool, the BC-specific Patient Concerns Inventory (PCI). This work includes a survey that is part of the validation process to allow a larger cohort and comparisons with clinical characteristics. We report the concerns that BC patients would like to discuss in the outpatient clinic - using the PCI - and also their choice of multidisciplinary team members they would like to see.
We carried out a cross-sectional survey - using the BC-specific PCI, the EORTC QLQ-C30 and the EORTC BC QLQ-BR23 - of patients who had completed their initial treatment and were attending a review outpatient clinic. 249 patients were recruited from February to July 2012.
Survey responses were obtained from 80% (200/249). The three most frequent items were fear of cancer coming back (62%, 124), breast sensitivity/pain (46%, 92), and fatigue/tiredness and low energy levels overall (46%, 92). The most frequently selected members of the multidisciplinary team that patients wished to see were the breast care nurse (46%, 92), the medical oncologist (28%, 55) and the psychologist (20%, 40).
The PCI provides the opportunity for multiprofessional engagement across a range of issues specific to BC. It can identify issues relating to physical, psychological, sexual and social functioning, as well as issues relating to body image and lifestyle.
在乳腺癌（BC）治疗中，有多种不同疗法，其副作用各异，会影响患者的健康相关生活质量（HRQOL）。在此，我们报告一种新型工具——乳腺癌特异性患者关注量表（PCI）。这项工作包括一项调查，该调查是验证过程的一部分，以便纳入更大的队列并与临床特征进行比较。我们报告了乳腺癌患者希望在门诊使用PCI讨论的问题，以及他们希望见到的多学科团队成员的选择。
我们对已完成初始治疗并前往复查门诊的患者进行了一项横断面调查，使用乳腺癌特异性PCI、欧洲癌症研究与治疗组织生活质量核心问卷（EORTC QLQ-C30）和欧洲癌症研究与治疗组织乳腺癌问卷（EORTC BC QLQ-BR23）。2012年2月至7月招募了249名患者。
80%（200/249）的患者完成了调查回复。最常见的三项是担心癌症复发（62%，124人）、乳房敏感/疼痛（46%，92人）以及总体疲劳/疲倦和精力不足（46%，92人）。患者希望见到的多学科团队中最常被选中的成员是乳腺护理护士（46%，92人）、肿瘤内科医生（28%，55人）和心理医生（20%，40人）。
PCI为跨专业参与一系列特定于乳腺癌的问题提供了机会。它可以识别与身体、心理、性和社会功能相关的问题，以及与身体形象和生活方式相关的问题。
