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采用参与式方法让少数群体参与敏感健康话题的研究。

Engaging minorities in researching sensitive health topics by using a participatory approach.

作者信息

Ismail Mubarak Musa, Gerrish Kate, Naisby Andrew, Salway Sarah, Chowbey Punita

机构信息

Centre for Health and Social Care Research, Sheffield Hallam University, South Yorkshire, UK.

出版信息

Nurse Res. 2014 Nov;22(2):44-8. doi: 10.7748/nr.22.2.44.e1268.

DOI:10.7748/nr.22.2.44.e1268
PMID:25423942
Abstract

AIM

To report the use of a community participatory approach (PA) in a project investigating tuberculosis (TB) in UK Somali migrants.

BACKGROUND

It is crucial to address health inequalities and persistent health problems, particularly in groups who are often excluded or seem hard to reach. TB is an illness stigmatised in the Somali population, making it a difficult topic for research. In this study, a community PA was used to investigate TB and members of the Somali community were recruited as co-researchers.

DATA SOURCES

Four community researchers (CRs), eight focus groups (n=48), interviews with members of the community (n=24), people with TB and ex-TB patients (n=14), and healthcare practitioners (n=18).

REVIEW METHODS

This is an informative paper. Discussion The paper describes the approach used in the recruitment of community researchers and how engaging early with community leaders using oral communication made it possible to research TB in the Somali community.

CONCLUSION

The PA led to capacity building, trust and a longer sustainable partnership with members of the Somali community. The success of the approach in the study suggests that there are valuable lessons for those researching similar topics with minority groups.

IMPLICATIONS FOR PRACTICE/RESEARCH: Involving people in health research topics with a stigma is possible. This paper highlights how this could be achieved using a community PA and the recruitment of community members as co-researchers. However, the PA is time-consuming and will depend on the skills of academic researchers in knowing and engaging with the community.

摘要

目的

报告在一项针对英国索马里移民结核病(TB)的项目中采用社区参与式方法(PA)的情况。

背景

解决健康不平等问题和持续性健康问题至关重要,尤其是在那些经常被排斥或似乎难以接触到的群体中。结核病在索马里人群中是一种带有污名化的疾病,这使得它成为一个难以研究的课题。在本研究中,采用社区参与式方法来调查结核病,并招募索马里社区成员作为共同研究者。

数据来源

四名社区研究者(CRs)、八个焦点小组(n = 48)、对社区成员(n = 24)、结核病患者和结核病康复者(n = 14)以及医疗从业者(n = 18)的访谈。

综述方法

这是一篇提供信息的论文。讨论 本文描述了招募社区研究者所采用的方法,以及如何通过口头交流尽早与社区领袖接触从而得以在索马里社区开展结核病研究。

结论

参与式方法带来了能力建设、信任以及与索马里社区成员建立了更长久的可持续伙伴关系。该方法在本研究中的成功表明,对于那些研究与少数群体类似主题的人来说有宝贵的经验教训。

对实践/研究的启示:让人们参与到带有污名化的健康研究主题中是可行的。本文强调了如何通过社区参与式方法以及招募社区成员作为共同研究者来实现这一点。然而,参与式方法耗时,并且将取决于学术研究者了解并与社区互动的技能。

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