De Clercq Eva, Badarau Domnita Oana, Ruhe Katharina M, Wangmo Tenzin
Institute for Biomedical Ethics, University of Basel, Bernoullistr 28, 4056, Basel, Switzerland,
Med Health Care Philos. 2015 Aug;18(3):421-31. doi: 10.1007/s11019-014-9616-3.
The involvement of children in non-beneficial clinical research is extremely important for improving pediatric care, but its ethical acceptability is still disputed. Therefore, various pro-research justifications have been proposed throughout the years. The present essay aims at contributing to the on-going discussion surrounding children's participation in non-beneficial clinical research. Building on Wendler's 'contribution to a valuable project' justification, but going beyond a risk/benefit analysis, it articulates a pro-research argument which appeals to a phenomenological view on the body and vulnerability. It is claimed that children's bodies are not mere physical objects, but body-subjects due to which children, as persons, can contribute to research that may hold no direct clinical benefit to them even before they can give informed consent.
让儿童参与非有益性临床研究对于改善儿科护理极为重要,但其伦理可接受性仍存在争议。因此,多年来人们提出了各种支持研究的理由。本文旨在为围绕儿童参与非有益性临床研究的持续讨论做出贡献。基于温德勒的“对有价值项目的贡献”理由,但超越风险/收益分析,本文阐述了一种支持研究的观点,该观点诉诸对身体和脆弱性的现象学看法。有人认为,儿童的身体不仅仅是物理对象,而是身体主体,正因为如此,儿童作为人,即使在能够给出知情同意之前,也可以为对他们可能没有直接临床益处的研究做出贡献。