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让儿童参与非治疗性研究:关于发展的论点。

Involving children in non-therapeutic research: on the development argument.

作者信息

Broström Linus, Johansson Mats

机构信息

Department of Medical Ethics, Lund University, BMC I12, 221 84, Lund, Sweden.

出版信息

Med Health Care Philos. 2014 Feb;17(1):53-60. doi: 10.1007/s11019-013-9486-0.

Abstract

Non-therapeutic research on children raises ethical concerns. Such research is not only conducted on individuals who are incapable of providing informed consent. It also typically involves some degree of risk or discomfort, without prospects of medically benefiting the participating children. Therefore, these children seem to be instrumentalized. Some ethicists, however, have tried to sidestep this problem by arguing that the children may indirectly benefit from participating in such research, in ways not related to the medical intervention as such. It has been argued, for example, that non-therapeutic pediatric research does not instrumentalize the children enrolled since it has the prospects of furthering their moral development. We argue that this argument is far too undeveloped to be taken seriously.

摘要

针对儿童的非治疗性研究引发了伦理问题。此类研究不仅针对那些无法提供知情同意的个体进行。它通常还涉及一定程度的风险或不适,且参与研究的儿童并无从医学上获益的前景。因此,这些儿童似乎被工具化了。然而,一些伦理学家试图回避这个问题,他们认为儿童可能会以与医学干预本身无关的方式从参与此类研究中间接受益。例如,有人认为非治疗性儿科研究并没有将所招募的儿童工具化,因为它有促进儿童道德发展的前景。我们认为这一论点太过不成熟,不值得认真对待。

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