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患有慢性病的儿童:疾病管理的观点

Children with chronic conditions: perspectives on condition management.

作者信息

Beacham Barbara L, Deatrick Janet A

机构信息

University of Pennsylvania School of Nursing, Philadelphia, PA; Indiana University School of Nursing, Indianapolis, IN.

University of Pennsylvania School of Nursing, Philadelphia, PA.

出版信息

J Pediatr Nurs. 2015 Jan-Feb;30(1):25-35. doi: 10.1016/j.pedn.2014.10.011. Epub 2014 Oct 22.

Abstract

This qualitative study described children's (8-13 years old) perspectives of their chronic health conditions (e.g., asthma, diabetes, cystic fibrosis): how they perceived their condition, its management, and its implications for their future. The study used the family management style framework (FMSF) to examine child perspectives on the joint venture of condition management between the child and family. Children within this age group viewed condition management in ways similar to their parents and have developed their own routines around condition management. Future studies of this phenomenon comparing child and parent perspectives would further our understanding of the influence of family management.

摘要

这项定性研究描述了儿童(8至13岁)对其慢性健康状况(如哮喘、糖尿病、囊性纤维化)的看法:他们如何看待自己的病情、病情管理以及病情对其未来的影响。该研究使用家庭管理风格框架(FMSF)来考察儿童对儿童与家庭之间病情管理合资企业的看法。这个年龄组的儿童看待病情管理的方式与他们的父母相似,并且围绕病情管理形成了自己的日常习惯。未来对这一现象进行比较儿童和父母观点的研究将加深我们对家庭管理影响的理解。

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