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慢性病对哮喘患儿家庭的影响。

The impact of a chronic condition on the families of children with asthma.

作者信息

Kurnat E L, Moore C M

机构信息

Hershey Medical Center, Hershey, PA, USA.

出版信息

Pediatr Nurs. 1999 May-Jun;25(3):288-92.

Abstract

As the incidence and severity of asthma continues to escalate, many families will encounter complex issues related to condition management and family coping. Nurses must understand the impact that a chronic condition can have upon the family in order to assist parents in developing their ability to manage their child's care. The use of an assessment tool, such as Hymovich's Parent Perception Inventory (HPPI) can assist nurses in this effort. Several research studies have demonstrated that common child and family concerns include time away from school and work; social restrictions; fear of exacerbations; and anxiety over treatment protocols. A preliminary study on a small convenience sample of families showed that parents had greatest concerns about time management, financial strain, and family relations (see Figure 1). Important nursing interventions related to family management of asthma include assessing family perceptions and coping abilities; encouraging expression of feelings and concerns; educating the child and family about the disease and condition management; supporting positive coping behaviors; and securing resources to help families manage their child's condition.

摘要

随着哮喘的发病率和严重程度持续上升,许多家庭将面临与病情管理和家庭应对相关的复杂问题。护士必须了解慢性病对家庭可能产生的影响,以便帮助家长培养管理孩子护理的能力。使用评估工具,如希莫维奇家长认知量表(HPPI),可以在这方面帮助护士。多项研究表明,常见的儿童和家庭担忧包括缺课和误工时间、社交限制、对病情加重的恐惧以及对治疗方案的焦虑。一项对一小部分方便样本家庭的初步研究表明,家长最担心的是时间管理、经济压力和家庭关系(见图1)。与哮喘家庭管理相关的重要护理干预措施包括评估家庭认知和应对能力;鼓励表达感受和担忧;对儿童和家庭进行疾病及病情管理教育;支持积极的应对行为;以及获取资源以帮助家庭管理孩子的病情。

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