Wang Ji-Wei, Yang Zhi-Qi, Liu Cong, Chen Si-Jia, Shen Qian, Zhang Tian-Rui, Partike Nancy S, Yuan Zheng-Ping, Yu Jin-Ming
School of Public Health, Key Laboratory of Public Health Safety, Fudan University, Shanghai, People's Republic of China.
School of Public Health, University of Hawaii at Manoa, Honolulu, HI, USA.
Patient Prefer Adherence. 2014 Dec 18;9:9-16. doi: 10.2147/PPA.S76617. eCollection 2015.
In the People's Republic of China, both western medicine (WM) and traditional Chinese medicine (TCM) are the main treatment and rehabilitation options for cancer patients. This study aimed to explore cancer survivors' perspectives and experience of treatment and rehabilitation, in order to promote patient-centered activities of treatment and rehabilitation.
Using a qualitative research approach, 68 cancer survivors were recruited from eight community cancer rehabilitation organizations in Shanghai, People's Republic of China. Eight focus group interviews were conducted. All these interviews were transcribed verbatim, and the data were analyzed by theme analysis.
WM was the main choice in treatment phase though study participants noted more side effects. TCM was primarily used in the recovery phase. The lack of communication between doctors and cancer patients appears to affect treatment adherence and impair the doctor-patient relationship. WM was expensive for diagnostic procedures and treatment, while the cumulative costs of frequent use of TCM in the long rehabilitation period were also high. Both treatment options created significant perceived economic burden on patients. Conflicting information about dietary supplements tended to make cancer survivors confused.
Improving the communication between doctors and cancer patients helps to ameliorate cancer patient adherence and the effect of treatments. It is essential to educate cancer patients about the effect and cost of both WM and traditional TCM. Meanwhile, marketing management and guidance to consumers regarding use of dietary supplements in the cancer rehabilitation field are also necessary.
在中华人民共和国,西医(WM)和中医(TCM)都是癌症患者主要的治疗和康复选择。本研究旨在探索癌症幸存者对治疗和康复的观点及体验,以促进以患者为中心的治疗和康复活动。
采用定性研究方法,从中国上海的八个社区癌症康复组织招募了68名癌症幸存者。进行了八次焦点小组访谈。所有访谈均逐字记录,并通过主题分析对数据进行分析。
尽管研究参与者指出西医有更多副作用,但西医仍是治疗阶段的主要选择。中医主要用于康复阶段。医生与癌症患者之间缺乏沟通似乎会影响治疗依从性并损害医患关系。西医的诊断程序和治疗费用昂贵,而在长期康复期间频繁使用中医的累积费用也很高。两种治疗选择都给患者带来了明显的经济负担。关于膳食补充剂的相互矛盾的信息往往会使癌症幸存者感到困惑。
改善医生与癌症患者之间的沟通有助于提高癌症患者的依从性和治疗效果。对癌症患者进行关于西医和中医的效果及费用的教育至关重要。同时,在癌症康复领域对消费者进行膳食补充剂使用方面的营销管理和指导也是必要的。