Kose Sukran, Mandiracioglu Aliye, Mermut Gulsen, Kaptan Figen, Ozbel Yusuf
Clinic of Infectious Diseases, Ministry of Health Tepecik Hospital, Izmir, Turkey.
Department of Public Health, Faculty of Medicine, Ege University, Izmir, Turkey.
Eurasian J Med. 2012 Apr;44(1):32-9. doi: 10.5152/eajm.2012.07.
The aim of this study was to describe how AIDS, as well as the stigma associated with it, affects the lives of HIV positive patients and their family members.
Three large state hospitals in the metropolitan area of Izmir participated in the study. Six focus groups were conducted with people infected with HIV (n=32) and their family members (n=11). Participants were asked to fill out a questionnaire to assess their HIV/AIDS knowledge and to convey how the stigma had affected them.
The most important problems identified were society and work-related social problems and access to health services. The patients and their family members stated that education was needed to correct misconceptions about HIV and to help them cope with related problems. We found that patients and their family members were sensitive about disclosure.
We determined the education, counseling and support needs of HIV-infected patients and their families. Additionally, we found that health personnel who monitor the patients should make more efforts on patients' education and counselling.
本研究旨在描述艾滋病及其相关耻辱感如何影响艾滋病毒阳性患者及其家庭成员的生活。
伊兹密尔大都市地区的三家大型公立医院参与了本研究。对32名艾滋病毒感染者及其11名家庭成员进行了6次焦点小组访谈。参与者被要求填写一份问卷，以评估他们对艾滋病毒/艾滋病的了解程度，并表达耻辱感对他们的影响。
确定的最重要问题是社会和与工作相关的社会问题以及获得医疗服务的机会。患者及其家庭成员表示，需要开展教育，以纠正对艾滋病毒的误解，并帮助他们应对相关问题。我们发现患者及其家庭成员对信息披露很敏感。
我们确定了艾滋病毒感染患者及其家庭的教育、咨询和支持需求。此外，我们发现，负责监测患者的医护人员应在患者教育和咨询方面做出更多努力。
