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[艾滋病病毒感染者/艾滋病患者及其家庭成员中与艾滋病相关的耻辱感和歧视研究]

[Study on HIV related stigma and discrimination among people living with HIV/AIDS and their family members].

作者信息

Sun Li-Na, Sun Ye-Huan, Zhang Dong-Dong, Zhao Qiong, Wang Feng-Sheng, Niu Juan-Juan, Gong Lei

机构信息

Department of Epidemiology and Health Statistics, Anhui Medical University, Hefei 230032, China.

出版信息

Zhonghua Liu Xing Bing Xue Za Zhi. 2010 Nov;31(11):1219-22.

Abstract

OBJECTIVE

To understand the perceived stigma and discrimination and received stigma and discrimination as well as the differences and reasons of them among people living with HIV/AIDS and their family members.

METHODS

307 people were investigated and 117 of which were HIV/AIDS and the others were their family members. Face to face interview was carried out.

RESULTS

HIV/AIDS and their family were living in the social environment rounded by stigma and discrimination. Stigma and discrimination could be divided into perceived stigma and discrimination and received stigma and discrimination, and these two kinds of stigma and discrimination were statistically significant different between HIV/AIDS and their family members (t = -12.540, P = 0.000), and the perceived stigma and discrimination was more serious than received stigma and discrimination. The perceived stigma and discrimination were related to their self-efficacy (OR = 0.558, P = 0.041), family APGAR (OR = 0.650, P = 0.027), infected with HIV or not (OR = 2.116, P = 0.004). The received stigma and discrimination were related to their self-efficacy (OR = 0.468, P = 0.028), family APGAR (OR = 0.427, P = 0.000) whether infected by HIV (OR = 3.412, P = 0.001).

CONCLUSION

Stigma and discrimination did exist in the environment where HIV/AIDS and their family lived, suggesting that it was necessary to develop a series of policies and measures to fight against stigma and discrimination.

摘要

目的

了解艾滋病病毒/艾滋病患者及其家庭成员所感知到的污名与歧视、所遭受的污名与歧视以及二者之间的差异和原因。

方法

对307人进行调查,其中117人为艾滋病病毒/艾滋病患者,其余为其家庭成员。采用面对面访谈。

结果

艾滋病病毒/艾滋病患者及其家庭成员生活在充满污名与歧视的社会环境中。污名与歧视可分为感知到的污名与歧视和遭受的污名与歧视,这两种污名与歧视在艾滋病病毒/艾滋病患者及其家庭成员之间存在统计学显著差异(t = -12.540,P = 0.000),且感知到的污名与歧视比遭受的污名与歧视更严重。感知到的污名与歧视与自我效能感(OR = 0.558,P = 0.041)、家庭功能适应度(APGAR)(OR = 0.650,P = 0.027)、是否感染艾滋病病毒(OR = 2.116,P = 0.004)有关。遭受的污名与歧视与自我效能感(OR = 0.468,P = 0.028)、家庭功能适应度(OR = 0.427,P = 0.000)、是否感染艾滋病病毒(OR = 3.412,P = 0.001)有关。

结论

艾滋病病毒/艾滋病患者及其家庭生活的环境中确实存在污名与歧视,提示有必要制定一系列政策和措施来对抗污名与歧视。

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