ten Cate K, van de Vathorst S
Department of General Practice, Section Medical Ethics, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.
Department of Medical Ethics and Philosophy, Erasmus Medical Center, Erasmus University Rotterdam, Rotterdam, The Netherlands.
J Perinatol. 2015 Jul;35(7):497-502. doi: 10.1038/jp.2014.238. Epub 2015 Jan 22.
To assess Dutch pediatricians' views on neuromuscular blockers for dying neonates.
Qualitative study involving in-depth interviews with 10 Dutch pediatricians working with severely ill neonates. Data were analyzed using appropriate qualitative research techniques.
Participants explained their view on neuromuscular blockers for neonates with a protracted dying process. Major themes were the interpretation of gasping, the role of (the suffering of) the parents, the need for judicial review and legislation's impact on the care participants provide for dying neonates.
The interviews show no consensus between pediatricians and provide insights into the points of disagreement. Interviews also suggest friction between the convictions of pediatricians and legislation, which seems to have an undesirable impact on Dutch care for dying neonates and their parents. This study raises important questions for pediatricians worldwide to reflect upon, such as: 'what constitutes 'dying well'?' and 'what role should the parents' perspective play?'.
评估荷兰儿科医生对濒死新生儿使用神经肌肉阻滞剂的看法。
定性研究，对10名治疗重症新生儿的荷兰儿科医生进行深入访谈。采用适当的定性研究技术对数据进行分析。
参与者阐述了他们对处于长期濒死过程的新生儿使用神经肌肉阻滞剂的看法。主要主题包括对喘息的解读、父母（的痛苦）所起的作用、司法审查的必要性以及立法对参与者为濒死新生儿提供护理的影响。
访谈表明儿科医生之间未达成共识，并揭示了分歧点。访谈还表明儿科医生的信念与立法之间存在冲突，这似乎对荷兰对濒死新生儿及其父母的护理产生了不良影响。这项研究为全球儿科医生提出了重要问题以供思考，例如：“何为‘善终’？”以及“父母的观点应发挥何种作用？”
