帕金森病患者照护者远程支持小组：一项试点研究。
Caregiver tele-support group for Parkinson's disease: A pilot study.
作者信息
Shah Shital P, Glenn Gretchen L, Hummel Eileen M, Hamilton Jane M, Martine Rebecca R, Duda John E, Wilkinson Jayne R
机构信息
Parkinson's Disease Research, Education and Clinical Center, Philadelphia VA Medical Center, 3900 Woodland Ave, Mail Stop #127, Philadelphia, PA 19104, USA; Department of Neurology, University of Pennsylvania Perelman School of Medicine, 300 S. 9th Street, 3rd Floor, Philadelphia, PA 19107, USA.
Parkinson's Disease Research, Education and Clinical Center, Philadelphia VA Medical Center, 3900 Woodland Ave, Mail Stop #127, Philadelphia, PA 19104, USA.
出版信息
Geriatr Nurs. 2015 May-Jun;36(3):207-11. doi: 10.1016/j.gerinurse.2015.02.002. Epub 2015 Mar 3.
BACKGROUND
Parkinson's disease (PD) is a disabling neurodegenerative disease that typically affects the geriatric population and requires a caregiver. Although caregiver burden reduces quality of life of the caregiver, support groups for caregivers have not been studied. Offering a tele-support group to PD caregivers would be an innovative approach to extending a novel resource.
METHODS
A single-center pilot study was conducted, enrolling caregivers in an 8-week tele-support group program. Mood state and caregiver burden were assessed at baseline and conclusion of the program using self-report questionnaires. Qualitative feedback was obtained at the conclusion of the program.
RESULTS
Seven female spouse caregivers enrolled; 86% completed the program. Although no statistically significant changes in questionnaire scores were found, the mean Geriatric Depression Scale decreased from 4.2 to 3 and qualitative feedback was universally positive.
CONCLUSIONS
The use of tele-support groups for PD caregivers is a feasible and innovative resource to address caregiver burden.
背景
帕金森病（PD）是一种致残性神经退行性疾病，通常影响老年人群，且需要照料者。尽管照料者负担会降低照料者的生活质量，但针对照料者的支持小组尚未得到研究。为帕金森病照料者提供远程支持小组将是一种扩展新型资源的创新方法。
方法
开展了一项单中心试点研究，让照料者参加一个为期8周的远程支持小组项目。在项目基线和结束时使用自我报告问卷评估情绪状态和照料者负担。在项目结束时获得定性反馈。
结果
7名女性配偶照料者入组；86%完成了该项目。尽管问卷得分未发现有统计学意义的变化，但老年抑郁量表平均分从4.2降至3，且定性反馈普遍为积极。
结论
使用远程支持小组来帮助帕金森病照料者是应对照料者负担的一种可行且创新的资源。
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