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先天性心脏病的医疗护理从儿科向成人阶段的过渡。

Transition of care in congenital heart disease from pediatrics to adulthood.

作者信息

Said Sameh M, Driscoll David J, Dearani Joseph A

机构信息

Division of Cardiovascular Surgery, Mayo Clinic, 200 First Street SW, Rochester, MN 55905.

Division of Pediatric Cardiology, Mayo Clinic, Rochester, MN.

出版信息

Semin Pediatr Surg. 2015 Apr;24(2):69-72. doi: 10.1053/j.sempedsurg.2015.01.003. Epub 2015 Jan 8.

DOI:10.1053/j.sempedsurg.2015.01.003
PMID:25770366
Abstract

Improvement in surgical techniques, anesthesia, and perioperative care has resulted in the majority of children born with congenital heart defects surviving into adulthood with a normal or near-normal quality of life. A careful transition from pediatric to adult care providers is important to avoid issues related to loss of continuity of care and any undue financial or psychological burdens to the patients and their families. The patients, their families, and the health care providers are faced with many challenges during this transition process that can be optimized and overcome by education about the heart defects and a team approach with clear lines of communication. This review addresses the challenges related to the transition of care from pediatrics to adults and provides the necessary recommendations to ensure a smooth transition process.

摘要

手术技术、麻醉和围手术期护理的改进,使得大多数患有先天性心脏缺陷的儿童能够存活至成年,拥有正常或接近正常的生活质量。从儿科护理人员到成人护理人员的谨慎过渡,对于避免与护理连续性丧失相关的问题以及给患者及其家庭带来任何不必要的经济或心理负担非常重要。在这个过渡过程中,患者、其家人和医疗保健提供者面临着许多挑战,通过对心脏缺陷的教育以及采用沟通清晰的团队方法,可以对这些挑战进行优化并克服。本综述探讨了从儿科护理向成人护理过渡相关的挑战,并提供了必要的建议,以确保过渡过程顺利进行。

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1
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Semin Pediatr Surg. 2015 Apr;24(2):69-72. doi: 10.1053/j.sempedsurg.2015.01.003. Epub 2015 Jan 8.
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引用本文的文献

1
Challenges for Adolescents With Congenital Heart Defects/Chronic Rheumatic Heart Disease and What They Need: Perspectives From Patients, Parents and Health Care Providers at the Institut Jantung Negara (National Heart Institute), Malaysia.患有先天性心脏病/慢性风湿性心脏病青少年面临的挑战及需求:来自马来西亚国家心脏研究所患者、家长和医疗服务提供者的观点
Front Psychol. 2021 Jan 27;11:481176. doi: 10.3389/fpsyg.2020.481176. eCollection 2020.
2
Three-dimensional echocardiography in adult congenital heart disease.成人先天性心脏病的三维超声心动图
Korean J Intern Med. 2017 Jul;32(4):577-588. doi: 10.3904/kjim.2016.251. Epub 2017 Jun 30.
3
Quality of life: an underutilized patient-reported outcome for adults with congenital heart disease.
生活质量:先天性心脏病成人患者中未得到充分利用的患者报告结局指标
J Thorac Dis. 2017 Apr;9(4):940-942. doi: 10.21037/jtd.2017.03.76.