Masquillier Caroline, Wouters Edwin, Mortelmans Dimitri, van Wyk Brian
Research Centre for Longitudinal and Life Course Studies (CELLO), University of Antwerp, Sint-Jacobstraat 2, Antwerp 2000, Belgium.
Centre for Health Systems Research and Development, University of the Free State, 205 Nelson Mandela Drive, Park West, Bloemfontein 9300, South Africa.
Int J Environ Res Public Health. 2015 Mar 18;12(3):3264-92. doi: 10.3390/ijerph120303264.
When aiming to provide chronic disease care within the context of human resource shortages, we should not only consider the responsibility of the individual person living with HIV/AIDS (PLWHA) but also the capacity of the social environment to actively encourage a lifestyle that fosters health. In this social environment, extensive efforts are thus required to increase HIV/AIDS knowledge, reduce stigma, stimulate HIV testing, improve health care-seeking behavior, and encourage safe sexual practices-described in the literature as the need for AIDS competence. In accordance with socio-ecological theory, one cannot restrict the research focus to communities, as AIDS competence studies should also incorporate the intermediate household level. In responding to this research need, the aim of this article is to conceptualize an "HIV/AIDS competent household" based on qualitative interviews and focus group discussions conducted in a township on the outskirts of Cape Town, South Africa. Our results show that a household's supportive response to disclosure allows a patient to live openly as HIV positive in the household concerned. This may mark the start of the road to HIV/AIDS competence in the household, meaning the PLWHA receives sustainable support throughout the care continuum and positive living becomes the norm for the PLWHA and his or her household. A feedback loop might also be created in which other household members are encouraged to be tested and to disclose their status, which is an important step towards a sustainable response to HIV/AIDS-related challenges. Despite the fact that this road to HIV/AIDS competence at the household level is fragile and prone to various barriers, this article shows that the household has the potential to be a health-enabling environment for PLWHA.
在人力资源短缺的情况下提供慢性病护理时,我们不仅应考虑感染艾滋病毒/艾滋病的个人(PLWHA)的责任,还应考虑社会环境积极鼓励促进健康生活方式的能力。因此,在这种社会环境中,需要做出广泛努力来增加艾滋病毒/艾滋病知识、减少污名化、促进艾滋病毒检测、改善寻求医疗行为,并鼓励安全性行为——文献中称之为艾滋病防治能力的需求。根据社会生态理论,不能将研究重点局限于社区,因为艾滋病防治能力研究还应纳入家庭这一中间层面。为满足这一研究需求,本文旨在基于在南非开普敦市郊一个城镇进行的定性访谈和焦点小组讨论,对“具备艾滋病防治能力的家庭”进行概念化。我们的研究结果表明,家庭对公开病情的支持性反应能让患者在相关家庭中以艾滋病毒阳性身份公开生活。这可能标志着家庭迈向艾滋病防治能力之路的开端,意味着艾滋病毒感染者在整个护理过程中能获得持续支持,积极生活成为其本人及其家庭的常态。还可能形成一个反馈循环,鼓励其他家庭成员进行检测并公开自己的状况,这是朝着可持续应对艾滋病毒/艾滋病相关挑战迈出的重要一步。尽管家庭层面实现艾滋病防治能力的道路脆弱且容易遇到各种障碍,但本文表明家庭有潜力成为艾滋病毒感染者促进健康的环境。