Tilkin C, Touchèque M, Missotten P, Etienne A M
Rev Med Liege. 2014 Nov;69(11):622-7.
This study assesses quality of life (Qol) in children with cancer history as well as Qol of their parents and examines the relationship between parental adjustment and children Qol. Two groups were formed: an experimental group composed by children with cancer antecedents and their parents and a control group with healthy children and their parents. Children have filled a questionnaire about their Qol. Parents have completed questionnaires about their coping, their illness perceptions, their parenting stress and their Qol. The results show that Qol was satisfactory and similar in both groups. Significant correlations were found between parental illness representations (threat and personal control) and children Qol as well as between coping strategies based on maintaining family cohesion and children Qol. This study highlights the need to assess the adjustment of parents after child cancer and to develop interventions targeting parental representations and coping strategies.
本研究评估了有癌症病史儿童的生活质量(Qol)及其父母的生活质量,并探讨了父母适应情况与儿童生活质量之间的关系。研究分为两组:一组为实验组,由有癌症病史的儿童及其父母组成;另一组为对照组,由健康儿童及其父母组成。儿童填写了一份关于其生活质量的问卷。父母完成了关于他们应对方式、疾病认知、育儿压力和生活质量的问卷。结果显示,两组的生活质量均令人满意且相似。研究发现,父母的疾病认知(威胁和个人控制)与儿童生活质量之间以及基于维持家庭凝聚力的应对策略与儿童生活质量之间存在显著相关性。本研究强调了评估儿童患癌后父母适应情况以及制定针对父母认知和应对策略的干预措施的必要性。