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研究优先级设定中的伦理与公平:利益相关者参与及弱势群体需求

Ethics and equity in research priority-setting: stakeholder engagement and the needs of disadvantaged groups.

作者信息

Bhaumik Soumyadeep, Rana Sangeeta, Karimkhani Chante, Welch Vivian, Armstrong Rebecca, Pottie Kevin, Dellavalle Robert, Dhakal Purushottam, Oliver Sandy, Francis Damian K, Nasser Mona, Crowe Sally, Aksut Baran, Amico Roberto D

机构信息

Cochrane Agenda and Priority Setting Methods Group; BioMedical Genomics Centre, F-140, Rail Vihar, 480, Madurdaha, Kolkata 700 107, West Bengal, India.

Special Technical Assistant, Fulbright-Clinton Fellow, Nepal Health Research Council, Government of Nepal, Ministry of Health and Population, Nepal.

出版信息

Indian J Med Ethics. 2015 Apr-Jun;12(2):110-3. doi: 10.20529/IJME.2015.030. Epub 2015 Mar 16.

DOI:
10.20529/IJME.2015.030
PMID:25797432
Abstract

A transparent and evidence-based priority-setting process promotes the optimal use of resources to improve health outcomes. Decision-makers and funders have begun to increasingly engage representatives of patients and healthcare consumers to ensure that research becomes more relevant. However, disadvantaged groups and their needs may not be integrated into the priority-setting process since they do not have a "political voice" or are unable to organise into interest groups. Equitable priority-setting methods need to balance patient needs, values, experiences with population-level issues and issues related to the health system.

摘要

一个透明且基于证据的优先事项确定过程能够促进资源的优化利用,以改善健康结果。决策者和资助者已开始越来越多地让患者及医疗保健消费者的代表参与进来,以确保研究更具相关性。然而,弱势群体及其需求可能无法纳入优先事项确定过程,因为他们没有“政治话语权”,或者无法组织成利益集团。公平的优先事项确定方法需要在患者需求、价值观、经历与人群层面的问题以及与卫生系统相关的问题之间取得平衡。

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