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儿童食物过敏:食物过敏管理与适应量表的编制

Children's Food Allergies: Development of the Food Allergy Management and Adaptation Scale.

作者信息

Klinnert Mary D, McQuaid Elizabeth L, Fedele David A, Faino Anna, Strand Matthew, Robinson Jane, Atkins Dan, Fleischer David M, Hourihane Jonathan O'B, Cohen Sophia, Fransen Hannah

机构信息

Department of Pediatrics, National Jewish Health, Department of Psychiatry, University of Colorado School of Medicine, Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Bradley/Hasbro Children's Research Center, Department of Clinical & Health Psychology, University of Florida, Division of Biostatistics & Bioinformatics, National Jewish Health, Department of Biostatistics & Informatics, University of Colorado School of Public Health, Department of Pediatrics, University of Colorado School of Medicine, Allergy Section, Children's Hospital Colorado, Department of Paediatrics and Child Health, University College Cork, and Graduate School of Social Work, University of Denver Department of Pediatrics, National Jewish Health, Department of Psychiatry, University of Colorado School of Medicine, Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Bradley/Hasbro Children's Research Center, Department of Clinical & Health Psychology, University of Florida, Division of Biostatistics & Bioinformatics, National Jewish Health, Department of Biostatistics & Informatics, University of Colorado School of Public Health, Department of Pediatrics, University of Colorado School of Medicine, Allergy Section, Children's Hospital Colorado, Department of Paediatrics and Child Health, University College Cork, and Graduate School of Social Work, University of Denver

Department of Pediatrics, National Jewish Health, Department of Psychiatry, University of Colorado School of Medicine, Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Bradley/Hasbro Children's Research Center, Department of Clinical & Health Psychology, University of Florida, Division of Biostatistics & Bioinformatics, National Jewish Health, Department of Biostatistics & Informatics, University of Colorado School of Public Health, Department of Pediatrics, University of Colorado School of Medicine, Allergy Section, Children's Hospital Colorado, Department of Paediatrics and Child Health, University College Cork, and Graduate School of Social Work, University of Denver Department of Pediatrics, National Jewish Health, Department of Psychiatry, University of Colorado School of Medicine, Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Bradley/Hasbro Children's Research Center, Department of Clinical & Health Psychology, University of Florida, Division of Biostatistics & Bioinformatics, National Jewish Health, Department of Biostatistics & Informatics, University of Colorado School of Public Health, Department of Pediatrics, University of Colorado School of Medicine, Allergy Section, Children's Hospital Colorado, Department of Paediatrics and Child Health, University College Cork, and Graduate School of Social Work, University of Denver.

出版信息

J Pediatr Psychol. 2015 Jul;40(6):572-80. doi: 10.1093/jpepsy/jsv009. Epub 2015 Mar 21.

Abstract

OBJECTIVE

Develop a measure that evaluates effective pediatric food allergy (FA) management, child and parent FA anxiety, and integration of FA into family life.

METHODS

A semistructured family interview was developed to evaluate FA management using a pilot sample (n = 27). Rating scales evaluated eight dimensions of FA management (FAMComposite), child anxiety, parent anxiety, and overall balanced integration (BI). Families of children with IgE-mediated food allergies (n = 60, child age: 6-12) were recruited for interview and rating scale validation.

RESULTS

FAMComposite was correlated with physician ratings for families' food avoidance and reaction response readiness. FA anxiety was correlated with general anxiety measures for children, but not parents. Parents' FA anxiety was correlated with expectations of negative outcomes from FA. Low BI was associated with poor quality of life and negative impact on family functioning.

CONCLUSIONS

Preliminary analyses support Food Allergy Management and Adaptation Scale validity as a measure of family adaptation to pediatric FA.

摘要

目的

开发一种评估小儿食物过敏(FA)有效管理、儿童和家长对FA的焦虑以及FA融入家庭生活情况的方法。

方法

开发了一种半结构化家庭访谈,以使用试点样本(n = 27)评估FA管理。评定量表评估了FA管理的八个维度(FAM综合量表)、儿童焦虑、家长焦虑和整体平衡融入(BI)。招募了患有IgE介导的食物过敏儿童的家庭(n = 60,儿童年龄:6 - 12岁)进行访谈和评定量表验证。

结果

FAM综合量表与医生对家庭食物回避和反应应对准备情况的评分相关。FA焦虑与儿童的一般焦虑测量指标相关,但与家长无关。家长的FA焦虑与对FA负面结果的预期相关。低BI与生活质量差和对家庭功能的负面影响相关。

结论

初步分析支持食物过敏管理与适应量表作为衡量家庭对小儿FA适应情况的有效性。

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