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谁需要丧亲之痛支持?一项基于人群的丧亲风险与支持需求调查。

Who needs bereavement support? A population based survey of bereavement risk and support need.

作者信息

Aoun Samar M, Breen Lauren J, Howting Denise A, Rumbold Bruce, McNamara Beverley, Hegney Desley

机构信息

School of Nursing and Midwifery, Faculty of Health Sciences, Curtin University, Perth, Western Australia, Australia.

School of Psychology and Speech Pathology, Faculty of Health Sciences, Curtin University, Perth, Western Australia, Australia.

出版信息

PLoS One. 2015 Mar 26;10(3):e0121101. doi: 10.1371/journal.pone.0121101. eCollection 2015.

Abstract

This study identifies and describes the profiles of bereavement risk and support needs of a community sample in Australia and tests the fit of the data with the three-tiered public health model for bereavement support. Family members who were bereaved 6-24 months prior to the survey and who were clients of four funeral providers participated (May-July 2013). A postal survey was used to collect information about bereaved people's experience of caring and perceived satisfaction with any bereavement support provided. The questionnaire included a validated risk assessment screening measure for Prolonged Grief Disorder (PG-13). A total of 678 bereaved people responded. The model predicted that 60% of the sample would be low risk, 30% moderate risk, and 10% high risk. Actual figures were very close at 58.4%, 35.2% and 6.4% respectively. The analysis of the demographic characteristics, experience and impact of caring and bereavement, and satisfaction with support received from a variety of sources revealed differential experiences and needs that align with the expectation of low, moderate, and high bereavement support need, as articulated in the public health model. This is the first empirical test of the public health model of bereavement support. As there is a lack of clear evidence to guide development and allocation of bereavement support programs, the findings have the potential to inform the ability of services, community organizations and informal networks to prioritize care according to each level of bereavement need. This is essential to achieve cost-effective and equitable resource allocation.

摘要

本研究识别并描述了澳大利亚一个社区样本的丧亲风险概况和支持需求,并检验了这些数据与丧亲支持的三级公共卫生模型的契合度。在调查前6 - 24个月丧亲且是四家丧葬服务提供商客户的家庭成员参与了研究(2013年5月至7月)。通过邮寄调查问卷收集丧亲者的照料经历以及对所提供的任何丧亲支持的感知满意度方面的信息。问卷包括一项经过验证的持续性悲伤障碍风险评估筛查量表(PG - 13)。共有678名丧亲者做出了回应。该模型预测样本中60%为低风险,30%为中度风险,10%为高风险。实际数据与之非常接近,分别为58.4%、35.2%和6.4%。对人口统计学特征、照料及丧亲的经历和影响,以及对来自各种来源的支持的满意度进行分析后发现,不同的经历和需求与公共卫生模型中所阐述的低、中、高丧亲支持需求预期相符。这是对丧亲支持公共卫生模型的首次实证检验。由于缺乏明确的证据来指导丧亲支持项目的制定和资源分配,这些研究结果有可能为服务机构、社区组织和非正式网络根据丧亲需求的不同水平确定护理优先级的能力提供参考。这对于实现具有成本效益和公平的资源分配至关重要。

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