Johnston Megan E, Treharne Gareth J, Chapman Peter T, Stamp Lisa K
From the Department of Medicine, University of Otago, Christchurch; Department of Psychology, University of Otago, Dunedin; Department of Rheumatology, Immunology and Allergy, Canterbury District Health Board, New Zealand.M.E. Johnston, PhD, Department of Medicine, University of Otago, Christchurch; G.J. Treharne, PhD, Department of Psychology, University of Otago, Dunedin; P.T. Chapman, MD, FRACP, Department of Rheumatology, Immunology and Allergy, Canterbury District Health Board; L.K. Stamp, MB, ChB, FRACP, PhD, Department of Medicine, University of Otago, Christchurch.
J Rheumatol. 2015 Jun;42(6):975-8. doi: 10.3899/jrheum.141442. Epub 2015 Apr 1.
Inadequate patient information about gout may contribute to poor disease outcomes. We reviewed existing educational resources for gout to identify strengths and weaknesses and compare resources cross-nationally.
Content, readability, and dietary recommendations were reviewed using a sample of 30 resources (print and Web-based) from 6 countries.
More than half of the resources were written at a highly complex level. Some content areas were lacking coverage, including comorbidity risks, uric acid target levels, and continuing allopurinol during acute attacks.
Our findings suggest significant room for improvement in gout patient educational resources, particularly regarding self-management.
患者对痛风的信息了解不足可能导致疾病预后不良。我们回顾了现有的痛风教育资源，以确定其优点和缺点，并在跨国范围内比较这些资源。
使用来自6个国家的30份资源（印刷版和网络版）样本，对内容、可读性和饮食建议进行了回顾。
超过一半的资源写作难度极高。一些内容领域缺乏覆盖，包括合并症风险、尿酸目标水平以及急性发作期间继续使用别嘌醇。
我们的研究结果表明，痛风患者教育资源有很大的改进空间，特别是在自我管理方面。
