Department of Rheumatology, Princess Alexandra Hospital, Ipswich Road, Brisbane, Australia.
Clin Rheumatol. 2013 Jun;32(6):771-8. doi: 10.1007/s10067-013-2168-8. Epub 2013 Jan 16.
Patient education is an important aspect of gout management, but there is evidence that many patients lack adequate knowledge of their condition. Our aim was to examine the characteristics of gout patient education resources. Ten gout patient information resources were examined for readability (Flesch-Kincaid reading level, the Simple Measure of Gobbledygook measure and the Flesch Reading Ease Score), qualitative characteristics such as figure and jargon use and whether they included information on the major points of gout. The median readability grade level of the examined resources was 8.5. The difference in readability grade level between the highest and the lowest education resource was 6.3 grade levels. The information content of the resources was high with an average of only 3.9 proposed criteria of 19 (19 %) absent from the resources. Jargon use was low and concepts were usually explained. However, important information regarding acute flare prophylaxis during urate-lowering therapy initiation and titration and treating serum uric acid to target was absent from 60 % of the patient education resources. There was poor use of key messages at the start. Gout patient resources have a wide range of readability. Thirty percent of resources were above the average reading level of rheumatology outpatients reported in previous studies. Sixty percent of gout patient resources omit education items that could impact on patient adherence and in turn patient outcomes. Further research is needed into the literacy levels and education requirements of patients with gout.
患者教育是痛风管理的一个重要方面，但有证据表明，许多患者对自己的病情缺乏足够的了解。我们的目的是研究痛风患者教育资源的特点。我们检查了 10 种痛风患者信息资源的可读性（弗莱什-金凯德阅读水平、简易迷惑度测量和弗莱什阅读舒适度得分）、质量特征，如图表和行话的使用情况，以及它们是否包含痛风的主要要点信息。所检查资源的平均可读性等级为 8.5。可读性最高和最低的教育资源之间的差异为 6.3 个等级。资源的信息含量较高，平均只有 19 项标准中的 3.9 项（19%）缺失。行话使用较少，概念通常都有解释。然而，有 60%的痛风患者教育资源缺乏降尿酸治疗开始和滴定期间急性发作预防以及将血尿酸控制到目标值的重要信息。起始时关键信息的使用较差。痛风患者资源的可读性差异很大。30%的资源超过了之前研究报告的风湿病门诊患者的平均阅读水平。有 60%的痛风患者资源遗漏了可能影响患者依从性进而影响患者结局的教育内容。需要进一步研究痛风患者的读写水平和教育需求。
