Brigo Francesco, Trinka Eugen
Department of Neurological and Movement Sciences, University of Verona, Italy; Department of Neurology, Franz Tappeiner Hospital, Merano, Italy.
Department of Neurology, Christian Doppler Klinik, Paracelsus Medical University, Salzburg, Austria; Centre for Cognitive Neuroscience, Salzburg, Austria; Department of Public Health Technology Assessment, UMIT - University for Health Sciences, Medical Informatics and Technology, Hall.i.T., Austria.
Epilepsy Behav. 2015 Aug;49:146-9. doi: 10.1016/j.yebeh.2015.02.029. Epub 2015 Apr 11.
Millions of people surf the Internet every day as a source of health-care information looking for materials about symptoms, diagnosis, treatments and their possible adverse effects, or diagnostic procedures. Google is the most popular search engine and is used by patients and physicians to search for online health-related information. This study aimed to evaluate changes in Google search behavior occurring in English-speaking countries over time for the term "status epilepticus" (SE).
Using Google Trends, data on global search queries for the term SE between the 1st of January 2004 and 31st of December 2014 were analyzed. Search volume numbers over time (downloaded as CSV datasets) were analyzed by applying the "health" category filter.
The research trends for the term SE remained fairly constant over time. The greatest search volume for the term SE was reported in the United States, followed by India, Australia, the United Kingdom, Canada, the Netherlands, Thailand, and Germany. Most terms associated with the search queries were related to SE definition, symptoms, subtypes, and treatment. The volume of searches for some queries (nonconvulsive, focal, and refractory SE; SE definition; SE guidelines; SE symptoms; SE management; SE treatment) was enormously increased over time (search popularity has exceeded a 5000% growth since 2004).
Most people use search engines to look for the term SE to obtain information on its definition, subtypes, and management. The greatest search volume occurred not only in developed countries but also in developing countries where raising awareness about SE still remains a challenging task and where there is reduced public knowledge of epilepsy. Health information seeking (the extent to which people search for health information online) reflects the health-related information needs of Internet users for a specific disease. Google Trends shows that Internet users have a great demand for information concerning some aspects of SE (definition, subtypes, symptoms, treatment, and guidelines). Policy makers and neurological scientific societies have the responsibility to try to meet these information needs and to better target public information campaigns on SE to the general population. This article is part of a Special Issue entitled "Status Epilepticus".
数以百万计的人每天上网查找医疗保健信息,寻找有关症状、诊断、治疗及其可能的不良反应或诊断程序的资料。谷歌是最受欢迎的搜索引擎,患者和医生都用它来搜索在线健康相关信息。本研究旨在评估随着时间推移,英语国家中“癫痫持续状态”(SE)一词在谷歌上搜索行为的变化。
利用谷歌趋势,分析了2004年1月1日至2014年12月31日期间全球对SE一词搜索查询的数据。通过应用“健康”类别过滤器,分析了随时间变化的搜索量数据(下载为CSV数据集)。
SE一词的研究趋势随时间保持相当稳定。美国报告的SE一词搜索量最大,其次是印度、澳大利亚、英国、加拿大、荷兰、泰国和德国。与搜索查询相关的大多数词汇都与SE的定义、症状、亚型和治疗有关。随着时间的推移,一些查询(非惊厥性、局灶性和难治性SE;SE定义;SE指南;SE症状;SE管理;SE治疗)的搜索量大幅增加(自2004年以来搜索热度增长超过5000%)。
大多数人使用搜索引擎查找SE一词,以获取其定义、亚型和管理方面的信息。不仅在发达国家,而且在发展中国家,搜索量都最大,在这些国家提高对SE的认识仍然是一项具有挑战性的任务,公众对癫痫的了解也较少。健康信息寻求(人们在线搜索健康信息的程度)反映了互联网用户对特定疾病的健康相关信息需求。谷歌趋势显示,互联网用户对SE某些方面(定义、亚型、症状、治疗和指南)的信息有很大需求。政策制定者和神经科学学会有责任努力满足这些信息需求,并更好地针对普通人群开展关于SE的公共信息宣传活动。本文是名为“癫痫持续状态”的特刊的一部分。