Santos Raquel L, Sousa Maria F B de, Ganem Ana C, Silva Thais V, Dourado Marcia C N
Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, RJ, Brazil.
Trends Psychiatry Psychother. 2013;35(3):191-7. doi: 10.1590/s2237-60892013000300006.
To explore differences in disease awareness in participants of a psychoeducational group designed for Latin American caregivers of people with dementia.
We assessed participants of a group developed at an outpatient unit for Alzheimer's disease. Interpretative phenomenological analysis was used to analyze differences in the caregivers' reports.
The participants, mostly spouses and daughters, presented moderate caregiver burden and different levels of awareness (aware, partially aware, or unaware). Disease awareness and the development of coping strategies were influenced by familism, religiosity, and duty. Becoming a caregiver was considered positive in some cases, due to religious convictions and beliefs related to the importance of caregiving. Caregiver unawareness may reflect an attempt to maintain integrity of the patient's identity.
Our data allow some comparisons across cultures, which may be valuable in assessing the influence of different psychosocial environments on the knowledge about dementia.
探讨为患有痴呆症的拉丁美洲患者照料者设计的心理教育小组参与者在疾病认知方面的差异。
我们评估了在一家门诊阿尔茨海默病科室开展的小组的参与者。采用解释现象学分析来分析照料者报告中的差异。
参与者大多为配偶和女儿，呈现出中度的照料负担以及不同程度的认知水平（知晓、部分知晓或不知晓）。疾病认知和应对策略的形成受到家庭主义、宗教信仰和责任感的影响。在某些情况下，由于宗教信念以及与照料重要性相关的信仰，成为照料者被视为积极的。照料者的不知晓可能反映出维护患者身份完整性的一种尝试。
我们的数据允许进行一些跨文化比较，这对于评估不同社会心理环境对痴呆症知识的影响可能具有重要价值。
