Bush Ruth A, Stahmer Aubyn C, Connelly Cynthia D
Rady Children's Hospital-San Diego, USA; University of San Diego, USA
UC Davis MIND Institute, USA.
Health Informatics J. 2016 Sep;22(3):702-11. doi: 10.1177/1460458215581911. Epub 2015 May 18.
This qualitative project used structured interviews with nine parents to examine perceptions of the electronic health record (EHR) and associated patient portal in the treatment of their child's autism spectrum disorder. Thematic analysis identified six complementary themes including: Familiarity and exposure to the EHR, changing experience of care (streamlining appointments, providing more rapid medical record access, increasing clinician awareness of the complexity of their child's medical treatment, and facilitating prescriptions), portal use, patient/EHR/portal interaction, interoperability, and mother as care coordinator. While aware of the patient portal, only one-third had registered to use it and these parents reported only limited use. In general, perceptions of the electronic health record are positive, but the patient portal has yet to have needed consumer adoption. Further research and functionality are needed to increase portal registration and greater portal integration in patient care.
这个定性研究项目对九位家长进行了结构化访谈，以考察他们对电子健康记录（EHR）以及相关患者门户网站在其孩子自闭症谱系障碍治疗中的看法。主题分析确定了六个互补主题，包括：对EHR的熟悉程度和接触情况、护理体验的变化（简化预约、提供更快捷的病历查阅、提高临床医生对其孩子治疗复杂性的认识以及便利处方开具）、门户网站的使用、患者/EHR/门户网站互动、互操作性以及母亲作为护理协调员。虽然家长们知晓患者门户网站，但只有三分之一的家长注册使用过，而且这些家长表示使用有限。总体而言，对电子健康记录的看法是积极的，但患者门户网站尚未获得患者的广泛采用。需要进一步研究并完善功能，以提高门户网站的注册率，并在患者护理中实现更大程度的门户网站整合。
