Garbin Cléa Adas Saliba, Garbin Artênio José Ísper, Carloni Maria Emília Oliveira Gomes, Rovida Tânia Adas Saliba, Martins Ronald Jefferson
Programa de Pós Graduação em Odontologia Preventiva e Social, Faculdade de Odontologia de Araçatuba, Universidade Estadual Paulista, Araçatuba, São Paulo, Brazil.
Rev Soc Bras Med Trop. 2015 Mar-Apr;48(2):194-201.
To analyze the knowledge, feelings and perceptions involving patients affected by leprosy, as a better understanding of these factors may be useful to decrease the stigma and prejudice associated with the condition.
The study cohort consisted of 94 patients who underwent treatment for leprosy at the Health Units in the City of Cuiabá, Mato Grosso (MT), Brazil. The study questionnaire included items to collect information on socio-demographic data, knowledge about the disease, stigma, prejudice, self-esteem and quality of life of leprosy patients. Bivariate analyses were used to assess the data based on the chi-square test with a 5% significance threshold.
The results revealed that the study population consisted predominantly of males (55.3%) with an income between 1 and 3 times the minimum wage (67%). The survey respondents reported that the most significant difficulties related to the treatment were the side effects (44.7%) and the duration of the treatment (28.7%). A total of 72.3% of the subjects were knowledgeable about the disease, of whom 26.6% had the leprosy reaction. Stigma and prejudice were cited by 93.6% of the participants. Based on the responses, 40.4% of patients reported being depressed and sad, and 69.1% of the subjects encountered problems at work after being diagnosed. A total of 45.7% of the patients rated their quality of life between bad and very bad.
Our results suggest that leprosy causes suffering in patients beyond pain and discomfort and greatly influences social participation.
分析麻风病患者的知识、感受和认知，因为更好地理解这些因素可能有助于减少与该疾病相关的耻辱感和偏见。
研究队列由94名在巴西马托格罗索州库亚巴市卫生单位接受麻风病治疗的患者组成。研究问卷包括收集社会人口统计学数据、疾病知识、耻辱感、偏见、自尊和麻风病患者生活质量等信息的项目。采用双变量分析基于卡方检验评估数据，显著性阈值为5%。
结果显示，研究人群主要为男性（55.3%），收入在最低工资的1至3倍之间（67%）。调查对象报告称，与治疗相关的最显著困难是副作用（44.7%）和治疗持续时间（28.7%）。共有72.3%的受试者了解该疾病，其中26.6%有麻风病反应。93.6%的参与者提到了耻辱感和偏见。根据回答，40.4%的患者表示感到沮丧和悲伤，69.1%的受试者在被诊断后工作中遇到问题。共有45.7%的患者将他们的生活质量评为差到非常差。
我们的结果表明，麻风病给患者带来的痛苦不仅限于疼痛和不适，还极大地影响了社会参与。
