中国一项单中心调查中患者及其家属的决策和信息披露偏好：一项试点研究
Patients' and Family Members' Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study.
作者信息
Wei Shanshan, Chen Fanglin, Chen Hongyan, Guo Ying, Hui David, Yennurajalingam Sriram, Chisholm Gary, Liu En, Liao Zhongli, Yang Li, Cheng Heng, Zhou Yuanyuan, Guo Hong, Bruera Eduardo
机构信息
Department of Gastroenterology, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
Cancer Institute of People's Liberation Army, Xinqiao Hospital, Third Military Medical University, Shapingba District, Chongqing, China.
出版信息
Am J Hosp Palliat Care. 2016 Sep;33(8):733-41. doi: 10.1177/1049909115588302. Epub 2015 May 27.
BACKGROUND
Understanding the medical decision-making and information disclosure preferences is important for care quality.
OBJECTIVES
To examine the feasibility of using the questionnaires and to identify modifications needed in the following study.
DESIGN
Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires.
RESULTS
More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions.
CONCLUSIONS
Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries.
背景
了解医疗决策和信息披露偏好对医疗质量很重要。
目的
检验使用调查问卷的可行性，并确定后续研究中需要做出的修改。
设计
33对晚期癌症患者及其护理人员被要求填写调查问卷。
结果
超过60%的患者和护理人员教育水平为初中及以下。患者的主动、被动或共同决策偏好分别为33.3%、39.4%和27.3%。33名患者中有20名、33名护理人员中有24名误解了问题。
结论
低教育水平可能是理解不准确的原因。在发展中国家有必要使用修改后的调查问卷版本。
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